Aging with Down Syndrome

Aging with Down Syndrome

Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones aging with Down syndrome. You will hear from leading experts about insights and advances in the field. You will meet professionals who are supporting individuals with Down syndrome through their senior years, and hear first-hand accounts from families who have navigated this caregiving journey. They will talk candidly about the unique challenges and joys found in this aging process, issues related to Alzheimer’s dementia, and give practical tips from lived experience.

Historically speaking, resources on this topic have been limited. Thankfully—as people with Down syndrome are living longer—more information is starting to coalesce. We hope this podcast will be a helpful resource for families and caregivers.

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Avsnitt(22)

When Caregivers Have to Step Back

When Caregivers Have to Step Back

When the work of caregiving for your loved one becomes unsustainable, stepping back is not abandonment but a thoughtful act of love, planning, and protection. Jadene shares the raw, complicated emotio...

22 Sep 30min

Our Favorite Things | Small Stuff Edition (Part 2)

Our Favorite Things | Small Stuff Edition (Part 2)

Sometimes the most useful caregiving tools come from places you’d never think to shop. Molly and Kristin share more of the practical fixes and smaller purchases that made a real difference when caring...

8 Sep 25min

Our Favorite Things | Small Stuff Edition (Part 1)

Our Favorite Things | Small Stuff Edition (Part 1)

Molly and Kristin talk about the little items that made the biggest difference in their day-to-day caregiving. Mentioned in this episode: Squirt bottles https://a.co/d/034vIlPq (Molly’s exact squirt...

25 Aug 41min

Brain Donation | One Woman's Gift to the Next Generation with Down Syndrome

Brain Donation | One Woman's Gift to the Next Generation with Down Syndrome

In this heartfelt episode, Molly shares her family’s experience with brain donation, and its incredible importance for Alzheimer's and Down syndrome research. She talks about why they decided to do it...

11 Aug 30min

What If a Caregiver Has an Emergency?

What If a Caregiver Has an Emergency?

What happens if a caregiver has a medical emergency while caregiving? And what if the person being cared for doesn’t understand, or can’t call for help? That was the scary situation Jadene’s son was i...

28 Juli 20min

Kristin’s Top Tips

Kristin’s Top Tips

Kristin learned some valuable lessons as her brother Matthew progressed through Alzheimer’s disease. Here, she shares her advice for caregivers who are on the dementia journey. Takeaways include: Tak...

14 Juli 12min

CARE Down Syndrome | A Conversation with Kandi Pickard and Brian Chicoine

CARE Down Syndrome | A Conversation with Kandi Pickard and Brian Chicoine

Have you ever wished you lived closer to a specialized Down syndrome medical clinic? Have you had to rely on healthcare providers who—even if they are well-meaning—lack the expertise or experience to ...

30 Juni 27min

Our Early Signs of Dementia

Our Early Signs of Dementia

Jadene, Kristin, and Molly look back and share what they recall were the earliest signs of dementia in their loved ones. They discuss which symptoms were the same and which were different between the ...

16 Juni 30min

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