Pathway to Cures; the venture philanthropy fund focused on transformative treatments for inheritable blood disorders ft. Len Valentino and Teri Willey
In this episode, host Luke Pembroke (Director of Community Engagement, Haemnet) sat down with Len Valentino (P2C Chief Executive Officer; and NBDF President & CEO) and Teri Willey (P2C Managing Direct...
9 Tammi 202434min
"Keep speaking their names. Keep remembering them." - Commemorating World AIDS Day 2023 ft. Mark Ward, LGBT Ambassador,The Haemophilia Society UK
In this episode we commemorate World AIDS Day 2023. Host, Dr Kate Khair is joined by contaminated blood scandal campaigner and The Haemophilia Society UK's LGBT Ambassador to discuss the impact HIV an...
1 Joulu 202339min
Von Willebrand what?... Disease? Disorder? Dismissed? - featuring community advocates Sunny Maini & Hannah Yarnall, The UK Haemophilia Society
In this episode, Director of Community Engagement, Luke Pembroke, and Director of Research, Kate Khair spoke with community advocates Sunny Maini and Hannah Yarnalll. Sunny and Hannah share their exp...
9 Elo 202344min
Psychologist Sylvia von Mackensen shares how her leap from sick buildings led her to become the guru of quality of life in haemophilia
From the development of standardised tools, their benefits and limitations, through to the challenges and changes we face in assessing quality of life for people with haemophilia and bleeding disorder...
6 Heinä 202331min
The Qualitative Revolution has Begun | Creative Qualitative Research feat. Dr Rich Gorman, Social Scientist at at Brighton and Sussex Medical School
Qualitative research is increasingly challenged to think creatively and critically about how accounts of lived experience might be collected, curated, and shared. Historically it could be said that qu...
13 Huhti 202344min
What does ageing well with haemophilia look like? | featuring Dr William McKeown and Randall Curtis
They say old age isn't so bad when you consider the alternative... In this episode, host Luke Pembroke (Haemnet's Director of Community Engagement) is joined by community members Dr William McKeown (...
21 Maalis 202338min
International Womens Day 2023 - The challenges faced by women in the bleeding disorders community ft. Dawn Rotellini, NHF
In this International Women's Day episode of Haemcast, two influential women leaders in the community, host Dr Kate Khair and Dawn Rotellini of the National Hemophilia Foundation (USA) discuss the cha...
8 Maalis 202335min
Shared decision making in an evolving treatment landscape for haemophilia and bleeding disorders ft. Dr Len Valentino, CEO National Hemophilia Foundation
"Shared decision making" has quickly become the new phrase bandied about at event and conferences within the haemophilia community. But what does shared decision making in haemophilia and bleeding dis...
20 Helmi 202329min
