The Powerful Impact of the IBD Community Featuring Katie Neu
About IBD19 Maj

The Powerful Impact of the IBD Community Featuring Katie Neu

Episode transcript and more information at: https://bit.ly/AIBD202

Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical. Chapters
  • 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease.
  • 01:25 — Amber and Katie discuss the IBD Social Circle, a community for patients, caregivers, and healthcare professionals.
  • 04:25 — The conversation turns to the experience of "faking being well" to manage social and professional expectations with an invisible illness.
  • 10:17 — Katie shares her experiences with the stigma surrounding IBD, from high school and college to the workplace.
  • 13:59 — The discussion focuses on the significant barriers to maintaining a career while living with IBD, including needing accommodations.
  • 23:20 — Amber and Katie discuss the impact of IBD on body image, dating, and intimate relationships.
  • 31:26 — The hosts talk about why people hesitate to join support groups and the mental health benefits of finding community.
  • 37:08 — Katie shares where listeners can find her online, including her Instagram and Substack, to connect and learn more.

The IBD Social Circle White Paper: The power of community in inflammatory bowel disease

Find Katie Neu of Badass With a Bad Ass at:

Find Amber J Tresca at:

Find Mac Cooney (mix, sound design, and theme music) at:

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

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