Albinism Life - Albinism research with Dr Helena Lee

Albinism Life - Albinism research with Dr Helena Lee

Helens Lee is a children’s eye doctor and clinician scientist who is currently researching the potential of improving retinal development and therefore vision in infants and young children in the first 18-24 months of life by taking levodopa. We chat about this and other research into albinism and why it’s not possible to just give someone a shot of pigment!

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Avsnitt(19)

Albinism Life growing up in Nigeria as a black person with albinism

Albinism Life growing up in Nigeria as a black person with albinism

Teejay was born in Lagos, Nigeria, before moving to the UK to study. In this episode, he talks openly about growing up with albinism in Nigeria, adapting to life in the UK, and his determination to...

27 Sep 22min

Albinism Life - Travelling with albinism and a visual impairment

Albinism Life - Travelling with albinism and a visual impairment

In this episode of Albinism Life, we talk to Emma about travel as a young person with albinism and low vision. Emma talks openly about some of the challenges she has faced — not just the practical ...

27 Sep 35min

Albinism Life - Naseem building a life as an Asian person with albinism in the UK

Albinism Life - Naseem building a life as an Asian person with albinism in the UK

In this episode, we hear Naseem’s extraordinary story. Born into the world’s largest family of people with albinism, Naseem talks openly about growing up with albinism, her family and the cultural ...

27 Sep 29min

Emma - albinism and travel as a young person

Emma - albinism and travel as a young person

Join Emma as she shares her story of travel as a young person with albinism and low vision. In this warm and honest conversation, she talks about navigating social situations, deciding when and how to...

27 Sep 35min

Naseem - albinism in an Asian culture in UK

Naseem - albinism in an Asian culture in UK

In this episode, we hear Naseem’s extraordinary story. Born into the world’s largest family of people with albinism, as recognised by Guinness World Records, she shares what it was like growing up in ...

27 Sep 29min

Teejay - Albinism in UK as a black person

Teejay - Albinism in UK as a black person

Teejay was born in Lagos, Nigeria, before moving to the UK to study. In this episode, he talks openly about growing up with albinism in Nigeria, adapting to life in the UK, and his determination to ma...

27 Sep 22min

Albinism 101 -  The basics of albinism

Albinism 101 - The basics of albinism

Kristina Venning Rose sits down with Dr Jay Self, Paediatric ophthalmologist, and leading Albinism expert from Southampton UK. He explains the basics of albinism in an easy-to-understand way.

17 Jan 202519min

Albinism Life “Blending  in at the opera”.

Albinism Life “Blending in at the opera”.

Luke has albinism and chats to Kristina Venning Rose about his experiences growing up, looking different, accepting himself and having an amazing career designing cruise ships which takes him all a...

17 Jan 202536min

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