What It’s Really Like to Outlive Your Life Expectancy

What It’s Really Like to Outlive Your Life Expectancy

Roman Perkins was born with Hurler syndrome (MPS I), one of the rarest genetic disorders in the world. Doctors didn't expect him to live into adulthood, but today he's defied those expectations and is sharing what life is really like living with a rare disease.In this episode of the What It's Really Like podcast, Roman opens up about growing up with a life-limiting diagnosis, navigating disability, overcoming assumptions about what he's capable of, and building a life on his own terms. He also shares the realities of living with a condition most people have never heard of, the challenges he's faced, and why representation and understanding matter. Follow Roman:Instagram: https://www.instagram.com/romanperkyyy/ TikTok: https://www.tiktok.com/@romanperkyyy Learn more about your ad choices. Visit megaphone.fm/adchoices

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(31)

What It’s Really Like Becoming a Quadriplegic, Then Surviving Cancer

What It’s Really Like Becoming a Quadriplegic, Then Surviving Cancer

Follow me on Socials: @MollyBurkeOfficial Pre-order my children's book, Eltie Takes the Lead! A heartwarming story inspired by the journey of a guide dog puppy, perfect for young readers who love a...

2 Okt 1h 31min

What It’s Really Like Being Diagnosed with Autism After Being on Big Brother

What It’s Really Like Being Diagnosed with Autism After Being on Big Brother

Follow Molly on Socials: @MollyBurkeOfficial Pre-order my children's book, Eltie Takes the Lead! A heartwarming story inspired by the journey of a guide dog puppy, perfect for young readers who lov...

25 Sep 2h 2min

What It's Really Like Training a Guide Dog for a Blind Person

What It's Really Like Training a Guide Dog for a Blind Person

In this episode of What It's Really Like, I sit down with a professional guide dog trainer from Guide Dogs of America whose career path is anything but ordinary. Before training guide dogs, she worked...

18 Sep 1h 37min

What It's Really Like Being A Guide Dog Puppy Raiser

What It's Really Like Being A Guide Dog Puppy Raiser

What It's Really Like Raising a Guide Dog Puppy for Guide Dogs of AmericaIn this episode of What It's Really Like, we sit down with a guide dog puppy raiser to talk about what it actually takes to rai...

11 Sep 1h 19min

What It's Really Like Building A DIY Empire Online from Your College Dorm

What It's Really Like Building A DIY Empire Online from Your College Dorm

LaurDIY on Growing Up an Only Child, Turning Broke College Dorm Struggles into a DIY Empire, and Accidentally Going Viral In this episode of What It's Really Like, we sit down with LaurDIY (Lauren Ri...

4 Sep 1h 54min

What It’s Really Like Being A Disabled Supermodel

What It’s Really Like Being A Disabled Supermodel

In this episode of What It’s Really Like, I sit down with model, actress, and disability advocate Jillian Mercado to talk about growing up with immigrant parents, being misdiagnosed before finding out...

28 Aug 1h 31min

What It’s Really Like Raising an Autistic Daughter as a Single Mom

What It’s Really Like Raising an Autistic Daughter as a Single Mom

What’s it really like raising an autistic child as a single mom? In this episode, I sit down with Christine Romeo, mom of Abbey Romeo from Netflix’s Love on the Spectrum, for an honest conversation ab...

21 Aug 2h 2min

What It’s Really Like When your Disability is Someone’s Fetish

What It’s Really Like When your Disability is Someone’s Fetish

The What It’s Really Like podcast is now available on all major podcast platforms! If you love the show, please subscribe wherever you prefer to listen so you never miss a new episode. What’s it real...

14 Aug 1h 47min

Populärt inom Samhälle & Kultur

podme-dokumentar
gynning-berg
p3-dokumentar
svenska-fall
en-mork-historia
aftonbladet-krim
rss-creepypodden
killradet
aftonbladet-daily
flashback-forever
hor-har
spar
rss-hemlispodden
rss-schyffert-sundin-ar-det-har-nat
kod-katastrof
de-fyras-gang
vad-blir-det-for-mord
rss-mer-an-bara-morsa
rysarpodden
mardromsgasten