Living With Cystic Fibrosis29 Nov 2021

Steven Strickland, new lease on life!

Steven Strickland is 28 years old and he's dealt with his own mortality more than he'd like. He was hoping to get a double lung transplant, but had to get rid of a deadly bacteria first (not once but 4 times). Then, after waiting years to be listed and almost dying....he said, "No." You'll hear why in this podcast.

Today he's an employee at the Apple Store in Troy, MI and owner of his own company, Giant Helmet.

Steven talks about the tough decisions he continues to make about transplant, mental health and his future.

Stricklands company will donate proceeds to our Foundation and the Rock CF Foundation. Strickland mentioned this in his podcast but made the official announcement after this podcast was released. The hockey sticks he cells will help pay for the Giant Helmets he donates to teams like the Detroit Lions, Detroit Red Wings and Detroit Tigers. Check out his website to see how you can purchase one (and remember, donations will go to his two CF charities of choice)!

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

For more on Steven's Giant Helmets, you can check out https://gianthelmet.com/

Vertex Pharma - the science of possibility. https://www.vrtx.com

Sponsored by https://www.fordfund.org/globalcaringmonth

To reach Lorna McEwan: https://www.facebook.com/lorna.l.mcewan

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(210)

16 Years of Hope: Why the Bonnell Foundation’s Mission Matters

Hi everyone, The Bonnell Foundation’s mission has always been deeply personal. As we celebrate our Sweet 16 Night of Hope Gala on September 19th, it’s a perfect time to reflect on why this work matte...

14 Sep 15min

CF Care Around the World with Petrina Fraccaro

Friends for years and with CF as their connection, Laura and Petrina have figured out how to raise CF awareness across the world. How does cystic fibrosis care compare between Australia and the United...

7 Sep 36min

The Anomaly: living off donated organs and dark humor by Inka Nisinbaum

What would you do if you didn't know what your future held? For people living with cystic fibrosis, uncertainty is often a constant companion. Inka Nisinbaum faced one of the biggest unknowns of her l...

27 Juli 47min

Ireland's Rising Golf Star, David Howard, who happens to have CF

Luck of the Irish. Irish international amateur golfer David Howard doesn't seem to need luck with all the talent he has. We had an inspiring conversation about chasing big dreams while living with ...

20 Juli 44min

CF Scholars: Stories of Determination

Dreams and Determination: Meet four Inspiring students, Living with cystic fibrosis. One of the greatest joys of The Bonnell Foundation is helping young adults living with cystic fibrosis pursue their...

13 Juli 53min

Turning family loss into hope: Kate O'Donnell's story

I thoroughly enjoy doing my podcasts. It’s the one thing I truly miss from my television news reporting days — interviewing extraordinary people every single day. Through The Bonnell Foundation, I now...

6 Juli 44min

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting...

29 Juni 48min

Running changed and saved her life - Katie O'Grady inspires

"Many people have their own thing that lights them on fire, for me, it's running" say Katie O'Grady. CF modulator drugs changes are a game changer for people living with cystic fibrosis. Katie O’Grad...

22 Juni 38min