Heart Failure: Breathlessness, Fatigue, and Daily Challenges - the patients view

Heart Failure: Breathlessness, Fatigue, and Daily Challenges - the patients view

Presented in collaboration with The Pumping Marvellous Foundation, this podcast aims to create a more compassionate, supportive environment for those living with heart failure.

By tuning in, you’ll gain deeper insights, discover valuable resources, and become part of a community dedicated to hope, resilience, and proactive change.

You Will Hear From:

  • Individuals Living with Heart Failure – Real, raw, and unfiltered perspectives on fatigue, breathlessness, and the daily challenges they face.
  • Carers and Family Members – Honest accounts of the emotional toll, constant worry, and sense of isolation that come with supporting a loved one.
  • Peer Support Advocates – How community groups offer relief from isolation, shared coping mechanisms, and a safe space to be heard and understood.

You Will Learn About:

  • Daily Living Challenges – How basic tasks like cooking, laundry, or even showering can become monumental hurdles—and the innovative strategies people use to manage them.
  • Emotional and Psychological Impact – Firsthand stories of anxiety, fear, and the uncertainty of coping with heart failure in a healthcare landscape that often drops off after discharge.
  • Misunderstandings and Stigma – The frustration of appearing “fine” on the outside while battling invisible symptoms, and why raising awareness is so crucial.
  • Resilience and Adaptation – The inspiring ways individuals take ownership of their condition, finding solutions, advocating for themselves, and refusing to give up.
  • Carer Experiences – Unique insights into the pressures carers face, and the resources and support systems designed to ease their load.
  • Holistic Approaches – Why listening to lived experiences is vital for building empathy, offering meaningful support, and improving overall care.

Why It Matters:

  • This podcast highlights the immense value of community and shared experience, turning isolation into collective strength.
  • You’ll hear about the ongoing search for better healthcare, from immediate care to long-term resources for individuals and carers alike.
  • Empathy and Understanding are at the heart of every conversation, offering a blueprint for how friends, family, and healthcare professionals can help.


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Avsnitt(55)

Heart Failure Unfiltered | We Got Dad Back... But Nothing Went Back to Normal

Heart Failure Unfiltered | We Got Dad Back... But Nothing Went Back to Normal

Getting the diagnosis is only the beginning. So what happens to a family once the crisis passes and heart failure just... stays?In this second episode of a two-part series, Nick Hartshorn-Evans - foun...

2 Sep 38min

Heart Failure Unfiltered | When Heart Failure Came Home

Heart Failure Unfiltered | When Heart Failure Came Home

A heart failure diagnosis doesn't just happen to one person - it happens to the whole family. So why does it so often take a crisis before anyone gets the diagnosis right?In this first episode of a tw...

26 Aug 52min

Heart Failure Unfiltered | Beyond Diagnosis: How BEAT Heart Health Events Deliver Value for the NHS

Heart Failure Unfiltered | Beyond Diagnosis: How BEAT Heart Health Events Deliver Value for the NHS

Finding heart failure early doesn't just save lives - it saves the NHS money, time, and capacity. But why are we still so slow at catching it?In this second episode of a two-part series, Nick is joine...

19 Aug 44min

Heart Failure Unfiltered | Finding Heart Failure Earlier – Why Timing Changes Everything

Heart Failure Unfiltered | Finding Heart Failure Earlier – Why Timing Changes Everything

A missed cough. An inhaler that didn't work. A night spent drowning in his own home. Gav Redhead's heart failure diagnosis came far too late — and he's not alone.In this first episode of a two-part se...

12 Aug 41min

How the Marvellous Masterclass is Changing Heart Failure Care | Heart Failure Unfiltered

How the Marvellous Masterclass is Changing Heart Failure Care | Heart Failure Unfiltered

What happens when patient voice, professional education, and system change collide in a single room?In this final episode of our four-part series, Nick Hartshorne-Evans and the team at the Pumping Mar...

5 Aug 28min

Heart Failure & Primary Care: The Moments That Matter | Heart Failure Unfiltered

Heart Failure & Primary Care: The Moments That Matter | Heart Failure Unfiltered

What does it actually feel like to be discharged from hospital with heart failure and handed back to a GP who may never have managed the condition before?In this episode of Heart Failure Unfiltered, N...

29 Juli 31min

Why Primary Care Holds the Key to Heart Failure | Heart Failure Unfiltered

Why Primary Care Holds the Key to Heart Failure | Heart Failure Unfiltered

Heart failure affects over a million people in the UK - yet most patients have never once thought to ask: "Could I have heart failure?" In this episode of Heart Failure Unfiltered, recorded live at Li...

22 Juli 41min

Why Being First Across the Line to Detect Heart Failure Matters | Heart Failure Unfiltered

Why Being First Across the Line to Detect Heart Failure Matters | Heart Failure Unfiltered

Heart failure affects over 900,000 people in the UK, yet it remains one of the most underdiagnosed conditions in primary care. Too many patients are only identified after a hospital admission - often ...

15 Juli 23min

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