Finding Music Again with RA and Sjogrens: Alice’s Story
Arthritis Life6 Mars 2025

Finding Music Again with RA and Sjogrens: Alice’s Story

From singing to trying nine different medications in five years, to embracing the THRIVE framework from Cheryl’s Rheum to Thrive Program, Alice shares the ups and downs of life with rheumatoid arthritis. Ultimately, Alice reminds us that living fully with RA doesn’t mean giving up on what matters—it means finding new ways to engage, and finding a way to balance grief for what you’ve lost with gratitude for what you still have.

If you’re newly diagnosed, her story is a powerful reminder of the importance of connecting with what matters and striving to thrive, even if the path looks different than you expected.

Episode at a glance:
  • Adjusting to Life with RA: Alice shares her journey of adapting to a rheumatoid arthritis diagnosis and how it has impacted her daily life and passions.
  • Coping with medication ups and downs: Alice shares the emotional roller coaster of trying nine different medications in five years in search of one that would put her RA into a lasting remission.
  • Music & Resilience: How Alice found creative ways to stay connected to music, including learning Gaelic to sing a special song.
  • The THRIVE Framework: Practical strategies Alice uses to maintain joy and purpose despite physical challenges.
  • Redefining Limitations: Encouraging insights on shifting perspectives and embracing new ways to engage with what you love.
  • Message of Hope: Alice’s advice for newly diagnosed individuals: you can still live a full, meaningful life—it just may look different than expected.
Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE,

an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.

See all the details and join the program or waitlist now!


Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(221)

Real Life with Juvenile  Arthritis: Three Kids Tell Their Stories

Real Life with Juvenile Arthritis: Three Kids Tell Their Stories

Along the way, they talk about the comfort of pets, the importance of finding friends who truly understand, why kids with invisible illnesses deserve to be believed, and the hope they've found through...

13 Aug 34min

Rheumer Has It: Romantic Relationships & Arthritis

Rheumer Has It: Romantic Relationships & Arthritis

Drawing from their own lived experiences, they discuss everything from when to disclose a diagnosis while dating to navigating rejection, communicating with partners, managing physical intimacy, and r...

30 Juli 36min

Can You Live A Normal Life with Rheumatoid Arthritis? (2026 Reflection + Encore Episode)

Can You Live A Normal Life with Rheumatoid Arthritis? (2026 Reflection + Encore Episode)

In this updated introduction, I share how my response to this question has changed, the importance of exploring internalized ableism, and why I think a better question is: Can I build a joyful, meanin...

16 Juli 54min

Rheumer Has It: Busting Medication Myths with Dr. Hazelwood: Encore Episode

Rheumer Has It: Busting Medication Myths with Dr. Hazelwood: Encore Episode

Dr. Hazelwood emphasizes the importance of balancing risks and benefits and provides insights into how modern treatments can significantly improve quality of life. The episode emphasizes the safety an...

2 Juli 24min

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

In this empowering conversation, Cheryl  and Dr. Kara Wada explore what it means to take charge of your health with conditions like Sjögren’s syndrome and mast cell activation syndrome (MCAS). Dr Kara...

18 Juni 1h 7min

Exploring the Intersection of Cancer and Rheumatoid Arthritis, with Dr. Singh

Exploring the Intersection of Cancer and Rheumatoid Arthritis, with Dr. Singh

They also explore exciting new therapies like CAR T-cell treatment, along with practical advice on self-advocacy, building the right healthcare team, and what it truly means to thrive while living wit...

4 Juni 44min

Rheumer Has It:  Role of the Multidisciplinary Team in Rheumatic Disease: OT, PT, Counseling and More!

Rheumer Has It: Role of the Multidisciplinary Team in Rheumatic Disease: OT, PT, Counseling and More!

They explain how occupational therapists, physical therapists, mental health professionals, pharmacists, and others can help you manage fatigue, pain, anxiety, daily routines, and life after diagnosis...

21 Maj 29min

Pregnancy, Postpartum & Parenting with Rheumatoid Arthritis, with Mariah Leach

Pregnancy, Postpartum & Parenting with Rheumatoid Arthritis, with Mariah Leach

Cheryl and Mariah discuss everything from medication decisions during pregnancy to adapting family life, traveling with chronic illness, managing expectations, and finding “micro moments” of joy along...

7 Maj 43min

Populärt inom Utbildning

det-skaver
historiepodden-se
rss-bara-en-till-om-beroende-medberoende
allt-du-velat-veta
nu-blir-det-historia
harrisons-dramatiska-historia
johannes-hansen-podcast
roda-vita-rosen
rss-viktmedicinpodden
i-vantan-pa-katastrofen
not-fanny-anymore
sektledare
rss-max-tant-med-max-villman
sa-in-i-sjalen
rikatillsammans-om-privatekonomi-rikedom-i-livet
vi-gar-till-historien
rss-traningsklubben
rss-basta-livet
rss-autismandan
sektpodden