Dr Ryan Hadley - Lung Transplants
Do you know what is needed before you have a lung transplant? Or even how it works? More and more adult CF clinics are explaining the details to adult patients, but if you're a CF parent, there is a...
29 Apr 202427min
Laura and Beth talk about what makes a Foundation work!
Everyone always asks me "What does it take to run a Foundation?" So I thought I would explain some of the different aspects of funny and challenging parts of running a Foundation.Please join me with ...
22 Apr 202440min
Rabbi Moskowitz, embracing the Queer community
He’s been arrested. He’s CIS gender with a wife and kids. Rabbi Mike Moskowitz is also an orthodox Jew’is and he is one of the biggest supporters of the queer community. Rabbi Moskowitz is the Scholar...
15 Apr 202458min
CF in Brazil, and one outstanding advocate
We’re going to Brazil for this podcast. Brazil is famous for some soccer players; you remember Pele and others. It’s the largest country in South America, it has 4 times zones…60 percent of the amazon...
8 Apr 202457min
Gut pain and CF, Dr. Jorge Machicado
So many people with cystic fibrosis have gut pain. It is often times, debilitating. Dr. Matthew DiMagno and Dr. Jorge Machicado are working to find answers to the suffering of people with CF, and othe...
1 Apr 202423min
Win Like A Girl - Maureen Electa Monte
Maureen Electa Monte and I go ... way back! When she was an engineer, and doing photography, she photographed our first Portraits of cystic fibrosis black and white calendar in 2003. The wives of the ...
25 Mars 202449min
Mindfullness and CF with Aliyah Novelli
Aliyah Novelli was diagnosed with cystic fibrosis as an infant. Today, she's a licensed social worker practicing as a child and family therapist at The Center for Change and Growth in Ardmore, PA. ...
18 Mars 202430min
CF Mom Vicky Maldonado talks Ultra Rare CF mutations
Canadian, Vicky Maldonado is the mother of a young boy living with a rare genetic form of CF. Sebastian is 6 years old, and a twin. The road to diagnosis was challenging. Sebastian was diagnosed with ...
11 Mars 202438min
