CF pioneer, program coordinator, Dee Aquazzino
To honor pioneers in CF during May, CF Awareness Month we are showcasing this pioneer. Dee Acquazzino was Pediatric Clinic Program Coordinator for 44 years as the CF at the Nebraska Regional CF Cente...
2 Maj 202251min
Ukraine refugee and CF Mom Kateryna Koval's story
This is the story of one Ukraine family escaping war to save their daughter Anna, who has CF. Kateryna, husband Andrew and 4 year old daughter Anna were awakened by the sounds of bombing at 5:00am in...
28 Mars 202244min
Dr. Ryan Thomas
We’re honored to talk with Dr. Ryan Thomas on this podcast. Dr. Thomas is one of the Bonnell Foundations Advisory Council members. A Grosse Pointe native, Dr. Thomas is a wealth of information. A Mi...
21 Mars 202237min
Salt in My Soul
Mallory Smiths book, Salt in my Soul was published posthumously by her mother, Diane Shader Smith (husband Mark) after she died from CF at the age of 25 years old. Smith died after a double lung tran...
7 Mars 202255min
Author Bijal Trivedi
Bijal Trivedi is a journalist and an author. She spent 8 years writing the book, Breath from Salt. It's an in-depth look at how parents with CF children banded together to start what is now the Cysti...
28 Feb 202255min
CF Mom and Plus Size QVC model Rebekah Farley talks CF
Rebekah Farley is someone you may know from Instagram or the QVC channel where she is a Plus size model. Rebekah and her husband Craig,have a 6 year old daughter Madelynn with cystic fibrosis and a so...
14 Feb 202240min
Gunnar Esiason
Gunna Esiason is 30 years old and is living with cystic fibrosis. He inspires his peers in the CF community every single day. If you have seen Gunnar’s blog, follow him on twitter, listened to his pod...
31 Jan 202236min
Future CF pulmonologists (thanks to a BF grant).
The future of CF pulmonologists! We all can play a role.Thanks to the generosity of SPARK Healthcare, Biophyiscs Corp. Drs. Susan Millard and Ahmet Uluer, (along with help from the Bonnell Foundation)...
24 Jan 202233min
