Narcolepsy Navigators Podcast

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.


Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.


Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."


Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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Avsnitt(64)

S5E2: How a 16-Year-Old Learned to Stop Masking Narcolepsy

S5E2: How a 16-Year-Old Learned to Stop Masking Narcolepsy

Leave a review! At just 16, Chloe has already lived through what most people spend decades trying to understand about themselves. Diagnosed with narcolepsy type 1 in seventh grade after a mysterious t...

3 Sep 42min

Who Decides What a Medical Breakthrough Is Actually Worth?

Who Decides What a Medical Breakthrough Is Actually Worth?

Leave a review! What is the exact dollar value of staying awake? In this special episode, we dig into a real independent evidence report on Orzeyful (oporexin), a newly FDA-approved drug for narcoleps...

15 Aug 23min

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Leave a review! It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH) and when she finally did, she found almost nothing online to help her make sense of it. So she bui...

10 Aug 50min

YouTube Hates Us and That's Exactly the Point

YouTube Hates Us and That's Exactly the Point

Leave a review! What happens when you crack open the backend analytics of a podcast built for one of the rarest, most invisible patient communities on earth? In this special episode, we dig into the d...

23 Juli 18min

S5E1: The Night I Carried My Sleeping Son to the ER

S5E1: The Night I Carried My Sleeping Son to the ER

Leave a review! What happens when your teenage son stops closing doors, watches the same movie three times in one day without remembering, and disappears from his own life for weeks at a time? In this...

23 Juli 1h 17min

S4E12: The Teacher Who Was Sent to Rehab for Being Sick

S4E12: The Teacher Who Was Sent to Rehab for Being Sick

Leave a review! Imagine falling asleep for two months straight — losing your memory, your personality, even your sense of time. That's life with Kleine-Levin Syndrome (KLS), one of the rarest sleep di...

14 Juli 52min

S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer

S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer

Leave a review! What does it look like to build an extraordinary life with narcolepsy — without medication? Welcome to the Narcolepsy Navigators Advocacy Series, where lived experience meets powerfu...

30 Juni 55min

S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser

S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser

Leave a review! Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Berna...

9 Juni 52min

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