#34 - Roundtable Discussion - Discussion for May 2019
In episode 34 of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale talk about the latest SMA news and perspectives from May 2019. Topics include clinical trial updates from the 2019 ...
21 Maj 201928min
Upper Survival Rate For Adults And Children With Neuromuscular Disorders & Being Kind
We discuss how the survival rate is up for adults and children with neuromuscular disorders. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how showing respect and ...
17 Maj 20198min
Study on How Leuprorelin Acetate Reduces Swallowing Dysfunctions in SBMA & Unique Interactions
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a study that finds how Leuprorelin Acetate may reduce swallowing dysfunctions in SBMA patients. Also, Community Development...
15 Maj 20199min
#33 - Interview With John Scurto
In episode 33 of the SMA News Today Podcast, host Kevin Schaefer interviews John Scurto from Boca Raton, Florida. John is a senior at Florida Atlantic University, studying business management, and he ...
6 Maj 201930min
Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships
We discuss how China has approved Spinraza for most SMA patients. Also, Community Editor Kevin Schaefer reads from his review of a book about inter-abled relationships by Ben Mattlin. Mattlin is a Los...
5 Apr 201910min
#30 - Roundtable Discussion - Featured Articles
In episode 30 of the SMA News Today Podcast, Kevin Schaefer and Michael Morale discuss the latest news regarding Spinraza (nusinersen) and Zolgensma (AVXS-101). Both of these drugs are designed to tre...
25 Mars 201930min
Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person
We discuss a study where perceived fatigue was not linked to physical factors regarding the quality of life in SMA patients. Also, SMA News Today’s Director of Multimedia, Michael Morale, talks about ...
11 Feb 20199min
#27 Interview With Michele Erwin
In episode 27 of the SMA News Today Podcast, Community Editor Kevin Schaefer interviews Michele Erwin, whose son Greyson has SMA. Michele is the founder of All Wheels Up, an organization dedicated to ...
11 Feb 201919min
