The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Avsnitt(250)

E169: Live Recordings from 10th Annual SUTP 5K/2K

E169: Live Recordings from 10th Annual SUTP 5K/2K

What a fabulous episode of the POTScast taped before our in-person 5K/2K. POTS patients and their loved ones spoke from their hearts to give an authentic glimpse of the ups and downs of living with a ...

22 Okt 202344min

E168: Headache Management in POTS with Dr. Karissa Arca

E168: Headache Management in POTS with Dr. Karissa Arca

Dr. Karissa Arca works at the intersection of autonomic and headache disorders at Mayo Clinic Arizona.  She is a wealth of information and also an advocate for patients. Join us to learn more about he...

17 Okt 202333min

E167: Listener's Questions Answered with Dr. Cathy Pederson

E167: Listener's Questions Answered with Dr. Cathy Pederson

In this episode, we cover POTS demographics, where sodium goes in the body, off-label medications, why meds stop working, and much more. Thanks to all who submitted questions! The papers discussed in ...

10 Okt 202344min

E166: POTS Diary with Lauren, a tennis player who developed POTS with Long COVID

E166: POTS Diary with Lauren, a tennis player who developed POTS with Long COVID

Lauren was a college tennis player and was always on the run when she developed COVID, Long COVID and POTS. At 23, her life is different now, and she continues to search for her new normal. You can re...

7 Okt 202329min

E165: Documentary on The Triad with Dr. Leonard Weinstock and Dr. Tania Dempsey as part of the Mast Cell Matters series

E165: Documentary on The Triad with Dr. Leonard Weinstock and Dr. Tania Dempsey as part of the Mast Cell Matters series

Dr. Weinstock and Dr. Dempsey are spearheading the creation of a documentary about MCAS, POTS, and EDS. Still in the planning stages, this documentary intends to educate medical professionals and the ...

3 Okt 202319min

E164: POTS after the COVID vaccine with Rachel Hellman, NP

E164: POTS after the COVID vaccine with Rachel Hellman, NP

Vaccine injury can occur after COVID injections, likely triggered by the COVID spike protein. Many people develop POTS or have worsening symptoms. Unfortunately, this can transform a healthy individua...

26 Sep 202349min

E163: POTS Diary with Courtney, a dog lover from Texas

E163: POTS Diary with Courtney, a dog lover from Texas

Several in her family have had mysterious symptoms for years, but Courtney was the first to be diagnosed with POTS. She uses Chat GPT to help her write letters to practitioners and organize her medica...

23 Sep 202333min

E162: Eating Disorders in Chronic Illness with Krista Day-Gloe

E162: Eating Disorders in Chronic Illness with Krista Day-Gloe

In some cases, chronically ill people are mislabeled as having an eating disorder when gastroparesis or MCAS is causing their symptoms. In other cases, eating disorders can develop secondary to dietar...

19 Sep 202338min

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