The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Avsnitt(250)

E145: POTS Diary with POTS Parent Leigh from Washington DC

E145: POTS Diary with POTS Parent Leigh from Washington DC

In retrospect, Leigh's daughter had symptoms since age 4, but her daughter's POTS wasn't diagnosed until she was a teenager. Leigh describes the struggle of the parent - worry, grief, questioning deci...

10 Juni 202332min

E144: Gut motility in POTS with Dr. Linda Nguyen

E144: Gut motility in POTS with Dr. Linda Nguyen

Dr. Linda Nguyen is a gastroenterologist who sees patients with POTS, EDS, and ME/CFS. She explains gut motility issues, nausea, and how to best prepare for an appointment. Down to earth, practical ex...

6 Juni 202333min

E143: POTS Diary with Victoria from New Jersey, a chemical engineering student and cyclist

E143: POTS Diary with Victoria from New Jersey, a chemical engineering student and cyclist

Victoria is a busy college student who commutes to school on the train daily. She is a competitive cyclist, likes to run, and hopes to contribute to the POTS community by helping to develop or enginee...

3 Juni 202330min

E142: Unravelling Medical Complexities with Dr. Ilene Ruhoy and Dr. David Kaufman

E142: Unravelling Medical Complexities with Dr. Ilene Ruhoy and Dr. David Kaufman

Drs. Ruhoy and Kaufman specialize in people that suffer from several chronic invisible illnesses. Thinking about them as a cluster and then breaking diagnosis and treatment down into pieces can help a...

30 Maj 202347min

E141: POTS Diary with POTSpouse Stephen

E141: POTS Diary with POTSpouse Stephen

Stephen's wife Becca developed POTS two years ago, and he shares the caregiver's perspective about POTS. As a young couple with a toddler, taking care of himself so that he can take care of his family...

27 Maj 202325min

E140: Romance and Relationships in Chronic Illness with Dr. Katie Gorman-Ezell

E140: Romance and Relationships in Chronic Illness with Dr. Katie Gorman-Ezell

Communication is important in any relationship, but is key when one partner is chronically ill. Understanding how each partner receives love is another important step in maximizing the impact for your...

23 Maj 202331min

E139: Diary with Becca, proud mom from Utah who developed POTS after food poisoning

E139: Diary with Becca, proud mom from Utah who developed POTS after food poisoning

Becca has a fascinating and most unusual story about her POTS trigger - food poisoning from 1000 year eggs while on a mission trip in Hong Kong. She is currently pregnant, and feeling extra POTSie as ...

20 Maj 202343min

E138: Advice from Both Sides of Healthcare with Dr. Melanie Hoppers

E138: Advice from Both Sides of Healthcare with Dr. Melanie Hoppers

Dr. Melanie Hoppers has a unique perspective on POTS - she learned of it when her daughter became ill and now dedicates her medical career to patients with POTS, ME/CFS, MCAS and long COVID. Join us f...

16 Maj 202330min

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