#145: From Mental Health to Lifestyle Change: What Recent MS Research Means for Everyday Life. An ECTRIMS 2025 Special

#145: From Mental Health to Lifestyle Change: What Recent MS Research Means for Everyday Life. An ECTRIMS 2025 Special

Living with multiple sclerosis means making daily decisions that go far beyond medication. Mental health, lifestyle, rehabilitation, empowerment, and access to care all play a crucial role in how well people live with MS.

In this special episode from ECTRIMS 2025, I bring together insights from six international experts who presented new research on well-being, mental health, lifestyle interventions, and patient empowerment in MS.

You'll hear what is already evidence-based, what looks promising but needs more research, and—most importantly—what you can realistically take from this research into your everyday life with MS.

👉 You can also read the full blog article with all details and references here:
https://ms-perspektive.de/EN/145-mental-health

🧠 Presentations & Key Topics 1️⃣ Types of Mental Health and Psychological Well-Being Rehabilitation in MS

Christoph Heesen (Germany)
What actually works when it comes to mental health support in MS?
This presentation reviews psychotherapy, mindfulness, self-management, and multidisciplinary rehabilitation—and why mental health care should be a standard part of MS treatment.

2️⃣ Designing Well-Being Rehabilitation Trials With Implementation in Mind

Marcia Finlayson (Canada)
Why promising interventions often never reach everyday care—and how research design must change so that well-being programs become accessible, affordable, and sustainable for people with MS.

3️⃣ Concealment of MS Diagnosis and Symptoms

Rebecca Maguire (Ireland)
Many people with MS hide their diagnosis or symptoms. This talk explores how concealment affects mental health, help-seeking behavior, and long-term well-being—and what support is needed.

4️⃣ A Goal-Oriented, Personalized Well-Being Intervention for Progressive MS

Silvia Poli (Italy)
Insights from the Living Well Program show how personalized, goal-based approaches can restore meaning, motivation, and a sense of control—especially for people with progressive MS.

5️⃣ Nurse-Led Expert Patient Programmes in MS Care

Miguel Angel Robles Sanchez (Spain)
How nurse-led, empowerment-focused programs improve knowledge, confidence, and engagement with care—and why peer learning matters in long-term MS management.

6️⃣ Sustained Benefits of a Multi-Domain Lifestyle Intervention: The LIMS Study

Arianne Gravesteijn (Netherlands)
Long-term results from a lifestyle intervention targeting diet, physical activity, sleep, and stress show sustained improvements in anxiety, fatigue, psychological impact, and general health over 24 months.

🌱 What This Means for You

Across all six presentations, one message stands out:
Living well with MS is multifaceted, modifiable, and supported by growing evidence.

Mental health, lifestyle habits, empowerment, and personalized goals are not "extras"—they are essential parts of MS care today and in the future.

📌 Further Reading

👉 Read the full accompanying blog article with detailed explanations and practical takeaways:
https://ms-perspektive.de/EN/145-mental-health

🔔 Subscribe & Share

If you found this episode helpful, please subscribe, share it with others living with MS, and help spread evidence-based information that empowers.

This podcast shares research insights and lived perspectives. It does not replace individual medical advice.

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Hear you soon and try to make the best out of your life,
Nele

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Episoder(184)

#182: How excercise can influence multiple sclerosis – interview with Prof. Dr. Dr. Philipp Zimmer

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#181: Stress and MS: factors, challenges and perspectives with Prof. Sigrid Arnade and Prof. Christoph Heesen

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#180: Cannabis and multiple sclerosis. Benefits, risks, CHS and what you should know

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#179: Multiple Sclerosis without the noise. Dominic Shadbolt on 35 years with MS, treatment and real patient involvement

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19 Aug 1h 5min

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

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12 Aug 25min

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

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#176: Progressive MS Research: Milestones, Setbacks and Hope with Tim Coetzee

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22 Jul 56min

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

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