BRCA & Beyond | A Hereditary Cancer Podcast6 Mai

Sharsheret CEO Elana Silber on BRCA, Genetic Risk, & Family Support

What happens after the diagnosis… after the genetic test… after the doctor’s appointment ends?

In this powerful episode of BRCA & Beyond, Marisa sits down with Elana Silber, CEO of Sharsheret, to discuss how the organization is transforming support for individuals and families navigating BRCA mutations, hereditary cancer risk, breast cancer, ovarian cancer, preventative surgeries, IVF with PGT-M, and survivorship.

Elana Silber has spent more than two decades leading Sharsheret’s life-saving support and education programs for women, men, and families facing cancer. Under her leadership, Sharsheret has grown from a small grassroots initiative into an internationally respected organization serving thousands each year across the United States, Israel, and beyond.

Together, Marisa and Elana explore the emotional realities that often go unspoken after a BRCA diagnosis — including fear, family planning, difficult medical decisions, motherhood, mental health, and the gap between clinical care and real-life support.

In this episode, they discuss:

• BRCA1 and BRCA2 genetic mutations

• Hereditary breast and ovarian cancer

• Genetic testing and understanding family history

• Preventative mastectomy and prophylactic surgery

• IVF with PGT-M and family planning options

• Peer support, grief, and mental health resources

• Mastectomy recovery kits and Sharsheret’s Busy Boxes for children

• How hereditary cancer impacts the entire family

• Why emotional support matters just as much as medical care

Elana also shares how Sharsheret provides free and confidential culturally relevant support, financial assistance, educational resources, genetic counseling, social work services, peer mentorship, survivorship support, and customized care kits for individuals and families navigating hereditary cancer and cancer treatment.

This conversation is filled with honesty, education, compassion, and hope for anyone navigating hereditary cancer risk, considering genetic testing, supporting a loved one, or searching for trusted resources after a BRCA diagnosis.

Learn more about Sharsheret at Sharsheret.org

Or follow on Instagram @SharsheretOfficial

🎙️ BRCA & Beyond is a podcast dedicated to hereditary cancer awareness, genetic mutations, previvorship, survivorship, advocacy, and the emotional realities of life before, during, and beyond genetic risk.

If this episode resonated with you, please leave a rating and review. This helps us reach more people navigating previvorship, survivorship, and life after a diagnosis.

Medical Disclaimer

This podcast is for informational and inspirational purposes only and is not intended to replace medical advice, diagnosis, or treatment. Always consult your physician or another qualified healthcare professional before making any medical decisions. The views and experiences shared by guests are their own and do not necessarily reflect the views of the host.

Connect with BRCA & Beyond

Instagram:

🧬 @BRCAandBeyond

💛 @MarisStache

Hosted on Acast. See acast.com/privacy for more information.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(42)

One Year of BRCA & Beyond: The Hereditary Cancer Podcast I Needed

BRCA & Beyond is officially one year old.In this anniversary episode, I’m sharing how my experience as a BRCA2 previvor and colon cancer survivor led me to create the hereditary cancer podcast I once ...

21 Aug 26min

"Where Were These When I Needed Them?" — Healing Pads for Mammograms & Menopause

In this episode of BRCA & Beyond, Marisa sits down with Founder & CEO Troy Sutton and his mom and co-founder, Debbie Sutton, to talk about The Healing Pads...reusable hot and cold therapy pads designe...

13 Aug 44min

Cancer, Genetics & the Blame Game

Why do people feel the need to explain why someone got cancer?From diet and stress to vaccines, chemicals, genetics, and lifestyle choices, a cancer diagnosis can quickly become an invitation for othe...

6 Aug 33min

Killer Tits Club: How Alexa Meyer Turned a Breast Cancer Diagnosis at 33 Into a Movement

There's no one right way to move through a breast cancer diagnosis. Alexa Meyer's way involved asking every question, trusting her body, and building a community from her chemo chair.In this episode, ...

29 Jul 1h 9min

ATM Gene Mutation, Stage 1 Breast Cancer & Why Genetic Testing Matters with Krista Brown

If you've been diagnosed with an ATM gene mutation, have a family history of breast cancer, or are wondering whether genetic testing could change your future, this conversation is for you.In this epis...

22 Jul 48min

Scanxiety: Waiting for Test Results, Biopsies, & Pathology

Scanxiety is something almost everyone in the cancer and hereditary cancer community knows all too well but it's not talked about nearly enough.In this episode of BRCA & Beyond, I'm opening up about o...

17 Jul 38min

Career and Job Struggles as a Previvor or Survivor

Career, job, and money struggles as a previvor or cancer survivor. A cancer diagnosis or genetic mutation finding, like BRCA or Lynch syndrome, changes more than your health; it changes your career, y...

10 Jul 51min

Living with BRCA1: Kristen Jordan on Family History, Prevention & Advocacy

What does it really mean to live with a BRCA1 gene mutation? How do you make life-changing decisions when hereditary cancer runs through your family?In this episode of BRCA & Beyond, I sit down with K...

2 Jul 1h 17min