Navigating Emotional Transitions with CHD

Navigating Emotional Transitions with CHD

(00:00:00) Naming the Unspoken
(00:00:26) Welcome and Topic Setup
(00:01:21) Meet the Panel
(00:04:07) Corinne on Life Decades
(00:06:55) Insurance and Anxiety Relief
(00:09:18) Jen Finds Her Voice
(00:12:25) Kerri on Safety and Trauma
(00:15:54) Perimenopause and Aging
(00:23:25) Fertility and Future Planning
(00:24:25) Grief and Adapted Life
(00:27:06) Coping Tools and Walking
(00:31:25) Gaps in Emotional Prep
(00:39:42) Holistic Joy and Triggers
(00:40:34) Trauma Body Holds Joy
(00:41:42) Panel Thanks and Break
(00:43:19) Audience Q&A Begins
(00:44:04) Pioneer Pressure and Labels
(00:48:10) No Break From CHD
(00:49:50) Mental Health Coverage Gaps
(00:51:02) Patient Provider Dual Role
(00:54:23) Tools to Recenter
(00:56:13) Sponsor Disclaimer and Books
(00:57:02) Co-Producers React
(00:59:23) Surprises Early Menopause
(01:02:52) Advocacy and Therapy Access
(01:07:12) Building Standardized Support
(01:11:13) Closing Thanks and Ways Connect

On the CHC Podcast, host Anna Jaworski and co-host Annie Ulchak discuss overlooked emotional transitions in congenital heart disease (CHD), beyond the shift from pediatric to adult cardiology. Guests Dr. Corinne Smorra, Jennifer Angelone, and Kerri Pastot share how lived experience shapes their mental health work, addressing social challenges, advocacy, medical trauma, and the need for coping tools.

The episode explores insurance flexibility into adulthood, the pressure of being labeled “resilient,” and new realities like perimenopause and aging with CHD, including concerns about limited research and medications. Panelists highlight gaps in standardized, lifespan emotional support and emphasize holistic care, integrated services, and learning to self-regulate through therapy, community, and practical strategies. Producers and audience members add perspectives on late diagnosis, grief, triggers, and access barriers to counseling.

You can find our guests on Instagram:
Jennifer Angelone: @jenniferangelonelmhc
Kerri Pastot: @kerrilynnx3
Corinne Smorra: @heartandmindcounseling

Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-congenital-heart-chronicles--5779157/support.

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Episoder(44)

Strength in Vulnerability: CHD Patients Turn Caregivers

Strength in Vulnerability: CHD Patients Turn Caregivers

(00:00:00) Strength in Vulnerability: CHD Patients Turn Caregivers (00:00:05) Intro & Guest Introductions (00:03:11) Donna: From Patient to Parent-Caregiver (00:05:04) Dillon: Fatherhood & Jackson's D...

1 Sep 1h 1min

Heart Camps That Change Lives

Heart Camps That Change Lives

(00:00:00) Welcome And Why Heart Camps Matter (00:02:50) Beat Retreat Begins For Adults (00:03:52) Camp Life Plus Anonymous Q&A (00:05:53) Camp Meridian For Kids And Teens (00:09:15) Accessibility And...

30 Jun 53min

After the Shock: From Diagnosis to Direction

After the Shock: From Diagnosis to Direction

(00:00:00) Welcome And Meet The Panel (00:03:12) The First Appointment Shock (00:06:39) Dismissed Symptoms And Second Opinions (00:08:16) Fight Or Flight And Family Pressure (00:12:01) How To Prepare ...

16 Jun 47min

Stroke Awareness: Awareness Today, Stronger Tomorrow

Stroke Awareness: Awareness Today, Stronger Tomorrow

(00:00:00) Introductions And Stroke Risk In CHD (00:03:40) What The First Symptoms Felt Like (00:10:09) Stroke Watch Meds And Follow Up (00:12:21) The Surprising Aftereffects Of Stroke (00:17:27) List...

31 Mai 1h 12min

Easing Anxiety Before the Operating Room

Easing Anxiety Before the Operating Room

(00:00:00) A Lifelong Patient’s Reality (00:01:16) What Triggers Pre-Op Anxiety (00:04:10) Frank’s OR Calm And Clear Words (00:09:05) Hypnotic Rapport And Familiar Voices (00:14:45) Music Therapy Tool...

28 Apr 57min

Tested Love Documentary On Faith And CHD Trauma

Tested Love Documentary On Faith And CHD Trauma

(00:00:00) Welcome! (00:02:06) A Heart Dad Chooses Hope (00:04:14) Demi's Miracle Through Music (00:08:23) Coping with Trauma Through Faith (00:11:48) Why Men's Mental Health Matters (00:15:11) CHD Re...

23 Mar 54min

New Year, New Narratives

New Year, New Narratives

In the first episode of Season 4, Anna Jaworski announces that The CHC Podcast: Congenital Heart Conversations has been reintroduced as Congenital Heart Chronicles after listener voting. This reflects...

1 Mar 36min

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