SUTP Research Survey
The POTScast28 Jan 2023

SUTP Research Survey

Please help us to better understand POTS! Dr. Pederson and Standing Up to POTS are launching a new online survey that takes 15-20 minutes to complete. We are seeking adults with a POTS diagnosis for this IRB approved survey. Please answer every question, and don't overthink it! We appreciate your time and effort to help us better understand the triggers, symptom load, and quality of life for people with POTS!

Find the survey here: https://www.standinguptopots.org/POTSresearchstudy

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Episoder(250)

When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook

When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook

For patients with medication hypersensitivities, figuring out exactly what is in a medication can be surprisingly difficult. In episode 247 of The POTScast, data scientist Mike Brook discussed researc...

23 Aug 44min

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series

In this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on highly reactive MCAS p...

15 Aug 33min

Emily on her daughter’s 20-year medical Odyssey, faith, EWOT and more

Emily on her daughter’s 20-year medical Odyssey, faith, EWOT and more

Emily's daughter had sensitivities since a very young age.  Emily recounts their journey with mysterious symptoms, good and bad medical encounters, conventional and unconventional treatments, faith an...

8 Aug 39min

Founder Austin Walker on Building the AI Layer for Chronic Illness

Founder Austin Walker on Building the AI Layer for Chronic Illness

Austin Walker sold his last company in 2020, then got COVID and never recovered. He spent 9 months bedridden, saw 20+ doctors who all dismissed it as stress. He eventually got better by joining online...

2 Aug 37min

Connecting the Dots in Long COVID with Dr. Robert Groysman

Connecting the Dots in Long COVID with Dr. Robert Groysman

After successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series, Dr. Robert Groysman ha...

28 Jul 1h 7min

Tiffany Hoke DNP, Complex neurovascular patient turned expert helping others

Tiffany Hoke DNP, Complex neurovascular patient turned expert helping others

Tiffany, a Doctor of Nursing Practice (with 6 other nursing/neurological credentials), relates her epic journey to uncover her own - and her family history of - neurovascular, neurometabolic and genet...

21 Jul 1h 8min

Endometriosis with Dr. Tania Dempsey as part of the Mast Cell Matters series

Endometriosis with Dr. Tania Dempsey as part of the Mast Cell Matters series

Is endometriosis related to mast cells, MCAS and POTS in some people?  Dr. Dempsey explains why she suspects a link, how fertility, insulin resistance and pelvic congestion syndrome may also be involv...

12 Jul 49min

Debra Hawkins, DNP, dysautonomia specialist with ER experience

Debra Hawkins, DNP, dysautonomia specialist with ER experience

Dr. Debra Hawkins, DNP, is an advanced practice nurse and cardiology provider at Cardiovascular Health Clinics in Oklahoma specializing in POTS and autonomic dysfunction.  She brings a unique perspect...

4 Jul 42min

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