Research, Resilience, and JIA:  Dr. Kaleb’s Journey
Arthritis Life13 Sep 2024

Research, Resilience, and JIA: Dr. Kaleb’s Journey

Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools.

He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb’s personal insights into balancing work and life offer hope for finding purpose and joy despite the challenges of living with arthritis. Together, they emphasize the importance of living meaningfully through activities like board games, time with family, and staying connected to a supportive community.

Episode Themes:
  • Personal Experiences and Resilience: Dr. Kaleb’s shares his personal journey with juvenile idiopathic arthritis, from diagnosis at age 3 to today.
  • Self-Management & Lifestyle: Cheryl & Dr. Kaleb discuss strategies for managing physical pain through ergonomic tools, proper footwear, and weight management.
  • Importance of Sleep: The critical role of good sleep in managing chronic illness, including the impact of sleep apnea and the benefits of CPAP therapy.
  • Managing a dual role of patient and researcher: Dr. Kaleb reflects on his decision to “go public” with his diagnosis of JIA after being known as an arthritis researcher, and discusses the pros and cons of sharing your story publicly
  • Cannabis and Pain Management: The evolving research and patient experiences with cannabis as a tool for managing chronic pain, despite its legal and research limitations.
  • Misinformation and Evidence-Based Care: The challenge of navigating biased or incomplete information about treatments and the importance of relying on evidence-based medicine.
  • Arthritis Research and the Role of Learning from the Patient’s lived experience: Dr Kaleb explains the importance of the FORWARD databank.com for ongoing research to improve patient outcomes.
  • Entertainment and Personal Interests: The role of hobbies, such as board games and movies, in providing enjoyment and coping with chronic illness.
Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

For full episode details include a transcript and video:

Go to the episode page on the Arthritis Life Website.


Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(224)

Living Well with Ankylosing Spondylitis: Lauren’s Journey from Patient to Occupational Therapist

Living Well with Ankylosing Spondylitis: Lauren’s Journey from Patient to Occupational Therapist

Lauren shares practical insights on adapting meaningful activities (including caring for and training dogs!), conserving energy, finding realistic hope, and building a life around what matters to you....

24 Sep 30min

The Power of Community: 5 Real Patients Share Their Stories

The Power of Community: 5 Real Patients Share Their Stories

Cheryl, Marisa, Alice, Gittel, Meg and Annette reflect on the profound impact of community, the invaluable educational components of the Rheum to THRIVE program, and the collective wisdom that has hel...

10 Sep 40min

Rheumer Has It: Axial Spondyloarthritis Myths v. Facts with Dr. Jean Liew

Rheumer Has It: Axial Spondyloarthritis Myths v. Facts with Dr. Jean Liew

In this encore episode, Dr. Liew shares her personal journey to becoming a rheumatologist inspired by a friend's diagnosis. She then discusses the condition in detail, addressing common misconception...

27 Aug 17min

Real Life with Juvenile  Arthritis: Three Kids Tell Their Stories

Real Life with Juvenile Arthritis: Three Kids Tell Their Stories

Along the way, they talk about the comfort of pets, the importance of finding friends who truly understand, why kids with invisible illnesses deserve to be believed, and the hope they've found through...

13 Aug 34min

Rheumer Has It: Romantic Relationships & Arthritis

Rheumer Has It: Romantic Relationships & Arthritis

Drawing from their own lived experiences, they discuss everything from when to disclose a diagnosis while dating to navigating rejection, communicating with partners, managing physical intimacy, and r...

30 Jul 36min

Can You Live A Normal Life with Rheumatoid Arthritis? (2026 Reflection + Encore Episode)

Can You Live A Normal Life with Rheumatoid Arthritis? (2026 Reflection + Encore Episode)

In this updated introduction, I share how my response to this question has changed, the importance of exploring internalized ableism, and why I think a better question is: Can I build a joyful, meanin...

16 Jul 54min

Rheumer Has It: Busting Medication Myths with Dr. Hazelwood: Encore Episode

Rheumer Has It: Busting Medication Myths with Dr. Hazelwood: Encore Episode

Dr. Hazelwood emphasizes the importance of balancing risks and benefits and provides insights into how modern treatments can significantly improve quality of life. The episode emphasizes the safety an...

2 Jul 24min

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

In this empowering conversation, Cheryl  and Dr. Kara Wada explore what it means to take charge of your health with conditions like Sjögren’s syndrome and mast cell activation syndrome (MCAS). Dr Kara...

18 Jun 1h 7min

Populært innen Fakta

fastlegen
dine-penger-pengeradet
rss-strid
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
foreldreradet
jakt-og-fiskepodden
rss-bisarr-historie
treningspodden
rss-orjasater
hverdagspsyken
tomprat-med-gunnar-tjomlid
mikkels-paskenotter
rss-kunstig-intelligens-med-elisabeth-maren-og-morten
takk-og-lov-med-anine-kierulf
sinnsyn
rss-kull
gravid-uke-for-uke
rss-kunsten-a-leve
rss-impressions-2
fryktlos