WTCF! A Cystic Fibrosis Podcast27 Mar 2023

Episode 15: Bella Powell

Ingrid sits down with Bella Powell, a young woman with CF who was the first in New Zealand to get Trikafta thanks to the late Sir Bob Elliott – who gave her this gift of life during his final months by funding the drug for her.

Following on from our last episode with Patrick Gower who broke the Trikafta story here in NZ, Bella shares her side of the story – her childhood in hospital, facing declining health in her teens and then becoming the face of the CF awareness and Trikafta campaign in New Zealand, to her journey working in some of the biggest and best theatrical productions in Australia.

I can not thank Bella enough for her honesty in what is an often difficult conversation that brings back lots of memories, both good and bad. What comes through loud and clear is her love and admiration for Sir Bob and all that he has given her. She articulates it all with poise, authenticity and positivity. Thank you Bella xx

Love the podcast? Support us through buymeacoffee.com/wtcfpod

ZOONO DISCOUNT CODE INSIDE! Tune in to get your discount code to receive 2 x 50ml Zoono hand sanitiser for free when you use our exclusive global code with any other purchase. And, the whole store is currently on 40% off (while stocks last, excludes the UK) so visit zoono.com today for this fantastic offer!

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(20)

Episode 18: CFNZ Lisa Burns

Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no o...

28 Jul 202333min

Episode 17: Wrestler

Ingrid chats to Dustin Raynor, better known as professional wrestler Dustin Bozworth. Dustin shares his story living with cystic fibrosis from childhood, to pro wrestling, to reality TV on ‘Stone Cold...

10 Jul 202329min

Episode 16: Hospital

Ingrid shares their journey during a recent hospital admission and Orson gives his views on the whole adventure

2 Jul 202328min

Episode 14: Journalist, Patrick Gower

Ingrid sits down with the well-respected and much-loved New Zealand journalist Patrick Gower to talk about the part he played in highlighting the need for funding of Trikafta for New Zealanders living...

25 Feb 202354min

Episode 13: Back to School

Ingrid chats with Helen Ulyatt, mother to an active 9-year-old CFer called Sophia. They chat about how she prepped for starting school and all the fears and worries surrounding this milestone, as well...

23 Jan 202344min

Episode 12: Our diagnosis story

We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the news. It's emotionally a highly charged episode but we end up lau...

19 Okt 202234min

Episode 11: Never Better

In this episode, Ian and I review the brilliant film Never Better and chat with its writer-director Julianne Fox. Julianne, who has CF herself, filmed Never Better in late 2020 and received great revi...

6 Sep 202240min