#073: "Haciendo Lo Invisible, Visible". Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US

#073: "Haciendo Lo Invisible, Visible". Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US

Crys was diagnosed with MS at the age of 11. She talks about her experiences as a first-generation Latina and her mission on social media. You can find all questions and answers on my blog: https://ms-perspektive.com/073-crys

Today I'm talking to Crys about her life with multiple sclerosis as a first generation Latina. Crys was diagnosed at age eleven and experienced her most severe episode at age 13 when she was paralyzed from the neck down. She recovered from this episode thanks to the devoted support of her family, especially her mother.

Nevertheless, to this day it remains a great challenge to have information about the disease, its symptoms and treatment options available in Spanish. To help children, adolescents and young adults in similar situations feel better than she did, Crys explains her life and the daily challenges of living with a chronic illness with a zest for life.

Introduction – Who is Crystal Bedoya?

Crystal is a disabled creator and writer from the warm and sunny state of Arizona, USA. Despite her early MS diagnosis at age 11, she loves traveling and exploring new countries, tracking down cute coffee shops with the best matcha, reading, staying active, going to concerts, and spending time with her loved ones.

Through her social media platforms, Crystal shares relatable content for people with chronic illnesses and helps educate others about living with MS as a young first-generation Latina.

How and where can interested people find you online?

I am on various platforms that include Instagram, TikTok, Threads, Twitter, Facebook, and YouTube as @CrystalBedoya

Is there anything else you would like to share with the listeners?

I'm always here for support, I love connecting with more MS friends online, so don't be afraid to
send me a message. I'm here to chat, answer questions, and be as supportive as I can be.

---

Thank you so much, Crys, for sharing your journey so far and creating content for people who are in a similar situation to you in one way or another. I hope life has many beautiful things in storefor you and rewards your strength with wonderful people and experiences.

See you soon and try to make the best out of your life,
Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(184)

#182: How excercise can influence multiple sclerosis – interview with Prof. Dr. Dr. Philipp Zimmer

#182: How excercise can influence multiple sclerosis – interview with Prof. Dr. Dr. Philipp Zimmer

This episode is the English translation and adaptation of my original German interview with Prof. Dr. Dr. Philipp Zimmer, first published in August 2023. Prof. Zimmer is a sports scientist, neuroscien...

9 Sep 38min

#181: Stress and MS: factors, challenges and perspectives with Prof. Sigrid Arnade and Prof. Christoph Heesen

#181: Stress and MS: factors, challenges and perspectives with Prof. Sigrid Arnade and Prof. Christoph Heesen

This episode is the English translation of my original German interview with Prof. Sigrid Arnade and Prof. Christoph Heesen, first published in April 2025. We explore what research currently tells us ...

2 Sep 34min

#180: Cannabis and multiple sclerosis. Benefits, risks, CHS and what you should know

#180: Cannabis and multiple sclerosis. Benefits, risks, CHS and what you should know

Cannabis is a popular and often emotional topic in the MS community. Some people hope it may help with spasticity, pain, sleep or other symptoms, while others are concerned about side effects, cogniti...

26 Aug 41min

#179: Multiple Sclerosis without the noise. Dominic Shadbolt on 35 years with MS, treatment and real patient involvement

#179: Multiple Sclerosis without the noise. Dominic Shadbolt on 35 years with MS, treatment and real patient involvement

What does living with multiple sclerosis for 35 years teach you about treatment, disability, information and the role MS should have in your life? In this episode, I talk with Dominic Shadbolt, founde...

19 Aug 1h 5min

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

Tai Chi and Qigong can be gentle, adaptable ways to support balance, coordination, mobility and body awareness in people with multiple sclerosis. In this episode, I talk with Tai Chi instructor Mirko...

12 Aug 25min

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

What may be the first signs of multiple sclerosis? Which tests are needed to diagnose MS, and what happens after the diagnosis? In this episode, I speak with Dr Datzmann, Senior Consultant at the MS C...

5 Aug 22min

#176: Progressive MS Research: Milestones, Setbacks and Hope with Tim Coetzee

#176: Progressive MS Research: Milestones, Setbacks and Hope with Tim Coetzee

Progressive MS research has made important advances, but many questions about disability progression, biomarkers, treatment, and quality of life remain unanswered. In this episode, I speak with Tim Co...

22 Jul 56min

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

Pain is one of the most common and life-impacting symptoms in multiple sclerosis. In this episode, Nele talks with Rasmus Christian Jungersen, PhD student at the Department of Exercise Biology at Aarh...

15 Jul 1h 8min

Populært innen Fakta

fastlegen
dine-penger-pengeradet
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
rss-strid
foreldreradet
rss-orjasater
treningspodden
jakt-og-fiskepodden
rss-kunsten-a-leve
rss-bisarr-historie
hverdagspsyken
takk-og-lov-med-anine-kierulf
sinnsyn
rss-var-forste-kaffe
mikkels-paskenotter
tomprat-med-gunnar-tjomlid
rss-impressions-2
lederskap-nhhs-podkast-om-ledelse
level-up-med-anniken-binz
gravid-uke-for-uke