About IBD20 Mai 2025

GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work. Topics covered on this episode:

Personal journey with ulcerative colitis and diagnosis experience
Emotional and physical challenges of living with inflammatory bowel disease (IBD)
Importance of community support and connection for individuals with chronic illnesses
Founding and evolution of the organization "GetYourBellyOut"
Advocacy and awareness efforts for IBD and its impact on patients
Family dynamics and the effects of IBD on relationships
Role of social media in connecting individuals with IBD
Challenges of being a public figure in the IBD community
Importance of patient feedback in improving care and resources
Future goals and initiatives for expanding support and resources for those affected by IBD

Find GetYourBellyOut on:

Find Amber J Tresca at:

AboutIBD.com: About IBD
Verywell: Verywell Health
Facebook: @aboutIBD
Twitter: @aboutIBD
Pinterest: @aboutibd
Instagram: @about_IBD
YouTube: @AboutIBD
Threads: @about_IBD

Find Mac Cooney (mix, sound design, and theme music) at:

Facebook: @maccooneycomposer
Instagram: @maccooneycomposer
Web: Cooney Studio
YouTube: @MacCooneyComposer
Theme music, IBD Dance Party, is from ©Cooney Studio.

Episode transcript and more information at: https://bit.ly/AIBD175 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

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Episoder(200)

Powerful Lessons: How Women Experience Life With IBD Featuring Alicia Aiello of Girls With Guts

Episode transcript and more information at: https://bit.ly/AIBD207 Alicia Aiello, president of Girls With Guts, shares her journey with IBD, which began in childhood. She discusses major surgeries, in...

11 Aug 49min

Hidden Ways IBD Affects You Over a Lifetime With Puja Khanna, MD

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21 Jul 41min

How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe

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7 Jul 35min

Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three m...

23 Jun 36min

Insider Secrets to Fearless Travel with IBD

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9 Jun 58min

The Powerful Impact of the IBD Community Featuring Katie Neu

Episode transcript and more information at: https://bit.ly/AIBD202 Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel ...

19 Mai 42min

Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five...

5 Mai 1h 18min

Is Your Eye Pain Actually an IBD Flare?

Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-in...

21 Apr 16min