#005: Whom do I tell about my MS diagnosis?

#005: Whom do I tell about my MS diagnosis?

The topic today is the pros and cons of dealing openly with the MS diagnosis. Who should know about it and who perhaps (at first) should not. You can read the full article on my blog at: https://ms-perspektive.de/005-whom-do-i-tell

This time it's about the pros and cons of who you tell about your MS diagnosis in your family, circle of friends, love relationships and work environment.

I believe it's up to each person to decide. In the post, I share my experience with you.

Table of Contents

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In the meantime, my focus is on my daughter, the topic of MS and writing. I've said goodbye to a secure permanent position and set up my own business at the beginning of 2022. In August 2022, I started the part-time master's program "Multiple Sclerosis Management" and have already successfully completed the first year and learned a lot. In addition to the German podcast, I have now started the English counterpart, which you are listening to right now. And I have a lot of project ideas waiting to be implemented. I am very happy with that.

But maybe it's different for you. And if you have superiors, their opinion of your illness and its course may influence their decision and your promotion. Some people will treat you with more respect because you are open and brave, others don't want to put you under too much stress, and the next one doesn't trust you.

You have to go your way, make your decisions and adjust them as needed if you feel it is right. I wish you luck with this!

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See you soon and try to make the best out of your life,
Nele

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Episoder(184)

#182: How excercise can influence multiple sclerosis – interview with Prof. Dr. Dr. Philipp Zimmer

#182: How excercise can influence multiple sclerosis – interview with Prof. Dr. Dr. Philipp Zimmer

This episode is the English translation and adaptation of my original German interview with Prof. Dr. Dr. Philipp Zimmer, first published in August 2023. Prof. Zimmer is a sports scientist, neuroscien...

9 Sep 38min

#181: Stress and MS: factors, challenges and perspectives with Prof. Sigrid Arnade and Prof. Christoph Heesen

#181: Stress and MS: factors, challenges and perspectives with Prof. Sigrid Arnade and Prof. Christoph Heesen

This episode is the English translation of my original German interview with Prof. Sigrid Arnade and Prof. Christoph Heesen, first published in April 2025. We explore what research currently tells us ...

2 Sep 34min

#180: Cannabis and multiple sclerosis. Benefits, risks, CHS and what you should know

#180: Cannabis and multiple sclerosis. Benefits, risks, CHS and what you should know

Cannabis is a popular and often emotional topic in the MS community. Some people hope it may help with spasticity, pain, sleep or other symptoms, while others are concerned about side effects, cogniti...

26 Aug 41min

#179: Multiple Sclerosis without the noise. Dominic Shadbolt on 35 years with MS, treatment and real patient involvement

#179: Multiple Sclerosis without the noise. Dominic Shadbolt on 35 years with MS, treatment and real patient involvement

What does living with multiple sclerosis for 35 years teach you about treatment, disability, information and the role MS should have in your life? In this episode, I talk with Dominic Shadbolt, founde...

19 Aug 1h 5min

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

#178: Tai Chi and Qigong for MS: Supporting Balance, Movement and Body Awareness – Interview with Mirko Lorenz

Tai Chi and Qigong can be gentle, adaptable ways to support balance, coordination, mobility and body awareness in people with multiple sclerosis. In this episode, I talk with Tai Chi instructor Mirko...

12 Aug 25min

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

#177: A First Diagnosis of Multiple Sclerosis: Symptoms, Tests, and Next Steps

What may be the first signs of multiple sclerosis? Which tests are needed to diagnose MS, and what happens after the diagnosis? In this episode, I speak with Dr Datzmann, Senior Consultant at the MS C...

5 Aug 22min

#176: Progressive MS Research: Milestones, Setbacks and Hope with Tim Coetzee

#176: Progressive MS Research: Milestones, Setbacks and Hope with Tim Coetzee

Progressive MS research has made important advances, but many questions about disability progression, biomarkers, treatment, and quality of life remain unanswered. In this episode, I speak with Tim Co...

22 Jul 56min

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

#175: Multiple Sclerosis and Pain. How Exercise and Physical Activity Can Help

Pain is one of the most common and life-impacting symptoms in multiple sclerosis. In this episode, Nele talks with Rasmus Christian Jungersen, PhD student at the Department of Exercise Biology at Aarh...

15 Jul 1h 8min

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