Summer of Activism: Attending a Town Hall
About IBD16 Jul 2019

Summer of Activism: Attending a Town Hall

Working with our local elected officials is important to having our voices heard. But attending local town hall meetings held by state or federal congressional representatives is daunting, especially if you've never done it before. Shawntel Bethea of Chronically Strong describes her journey from sending an email to asking for support from her Congresswoman at a meeting in her district. She gives her tips on how you can make an impact in your community for people living with IBD.

Find Shawntel Bethea of Chronically Strong, at:

Find Amber J Tresca of About IBD at:

Credits:

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Episoder(224)

Why Flare-Ups Aren't Failure: The Truth About Chronic Illness Grief

Why Flare-Ups Aren't Failure: The Truth About Chronic Illness Grief

Transcript and more information: https://bit.ly/AIBD211   Flare-ups in chronic illness can reopen feelings of grief. Clinical psychologist Dr Antonia Repollet shares her journey with Crohn's disease a...

22 Sep 33min

How to Eat Well When Chronic Fatigue Makes Cooking Impossible With Nicholas Kelly MS, RD

How to Eat Well When Chronic Fatigue Makes Cooking Impossible With Nicholas Kelly MS, RD

Cystic fibrosis (CF) is thought of as a lung disease, but it affects the entire body. Amber Tresca speaks with Nicholas Kelly, MS, RD—a registered dietitian, public speaker, and cystic fibrosis advoca...

15 Sep 26min

Why Your Symptoms Get Dismissed (and How to Be Heard) — With Morgan Check, NP

Why Your Symptoms Get Dismissed (and How to Be Heard) — With Morgan Check, NP

Pediatric GI Nurse Practitioner Morgan Check shares her journey living with Crohn's disease, navigating a diagnosis change, emergency surgery, and motherhood. She uncovers the challenges facing women ...

25 Aug 39min

The Truth About How IBD Affects Families With Adam and Brandon Sikes

The Truth About How IBD Affects Families With Adam and Brandon Sikes

Adam Sikes was diagnosed with ulcerative colitis at 18 and later with stage 1 colon cancer. Along with his son Brandon, Adam shares how his family supported him through decades of illness, surgery, an...

18 Aug 31min

Powerful Lessons: How Women Experience Life With IBD Featuring Alicia Aiello of Girls With Guts

Powerful Lessons: How Women Experience Life With IBD Featuring Alicia Aiello of Girls With Guts

Episode transcript and more information at: https://bit.ly/AIBD207 Alicia Aiello, president of Girls With Guts, shares her journey with IBD, which began in childhood. She discusses major surgeries, in...

11 Aug 49min

Hidden Ways IBD Affects You Over a Lifetime With Puja Khanna, MD

Hidden Ways IBD Affects You Over a Lifetime With Puja Khanna, MD

The truth about inflammatory bowel disease (IBD) is that it goes beyond the gut. In this first ever live recording of About IBD, Amber talks with Dr. Puja Khanna from Cedars-Sinai to explore the extra...

21 Jul 41min

How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe

How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe

Emergency room visits are a source of stress and can lead to fragmented care. Amber speaks with psychologist Dr Stephen Lupe to learn why inflammatory bowel disease (IBD) patients avoid the ER, the re...

7 Jul 35min

Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three m...

23 Jun 36min

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