A mom's journey with 22q11.2

A mom's journey with 22q11.2

I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently in each person, some things might not be. I'm simply hoping that people will become educated about this interesting genetic syndrome.

Episoder(30)

Humanitarian Work!

Humanitarian Work!

A desire to live life isn't any different for an individual with special needs. I'm so glad that we've been able to find ways to make that happen for our daughter.

8 Feb 202011min

Work and accommodations part 2

Work and accommodations part 2

This subject is hard. Trying to explain to someone why it's hard is...hard!! Don't let people who don't understand your situation make you feel inadequate. This is tricky business. If your state has good accommodations for helping your child get a job, and keep a job, then get them involved.

6 Feb 202043min

Work and accommodations part 1

Work and accommodations part 1

Jobs are tricky. When looking for employment be certain to communicate limitations and the need for potential accommodations.

5 Feb 202016min

The first rule in any emergency: REMAIN CALM!!

The first rule in any emergency: REMAIN CALM!!

This episode is about dating and your special needs child. Things may happen that make you feel uncomfortable, however, overreaction never helps anything or anyone. Remain calm.

2 Feb 202022min

Take good care of the caregiver!

Take good care of the caregiver!

This is such an important topic! Everyone suffers when the caregiver gets burnout. They are NOT weak for getting to that point. Honor them by keeping them in your mind and making sure they are cared for. If YOU are the caregiver you NEED to communicate your needs to others.

31 Jan 202027min

Trichotillomania

Trichotillomania

Sarah experiences trichotilmania. It’s gotten better, however, she still pulls out her eyelashes and eyebrows. I don’t know if this podcast will be helpful to anyone, but here’s some information and experience that we went through.

27 Jan 202017min

Public School VS Private School

Public School VS Private School

It's a big decision. Both have advantages and disadvantages.

24 Jan 202020min

Stuck

Stuck

Stuck in an age, stuck in a pattern, stuck in emotions. None of it is uncommon, and honestly, sometimes it's really hard.

23 Jan 202015min

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