You Have to Take Care of Yourself
Being diagnosed with inflammatory bowel disease (IBD) at any time or at any age is challenging. However, the pre-biologic era was especially difficult because of the lack of treatment options and the ...
8 Okt 201933min
I Would Have Missed the Window for a Child
People with IBD are often faced with unexpected challenges that are outside of those being experienced by their peer group. Jen Mcgregor of Crohnie Clothing found herself grappling with questions abou...
24 Sep 201924min
He Would Do the Same for Me
Caregivers play an important role in the disease journey. For Rebecca Kaplan, whose husband, Dan, lives with Crohn's disease, caregiving has been a large part of her life at times. When she went looki...
10 Sep 201932min
Summer of Activism: Connecting the Numbers to a Story
In the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn's and Colitis Awaren...
27 Aug 201916min
Summer of Activism: It's Now or Never
If you have the chance to speak on behalf of the inflammatory bowel diseases (IBD) community: would you take it? At first, volunteer and Crohn's disease advocate Keri Flaccomio wondered if she had a r...
19 Aug 201928min
Summer of Activism: Have Your Voice Heard on the Hill
The inflammatory bowel diseases (IBD) can make people feel powerless and isolated. Participating in day on the Hill events in Washington DC with patient advocacy groups are one way to take back contro...
13 Aug 201917min
Summer of Activism: Attending Day on the Hill
How does an IBD patient attend Day on the Hill events and meet with the offices of congressional representatives in Washington DC? What is it like to go to these events? In this episode I describe how...
30 Jul 201916min
Summer of Activism: Getting Kids Involved in Advocacy
How young is "too young" to get kids involved in activism? Gastroenterologist and activist Dr Meenakshi Bewtra started her kids on their activism journey at birth and continues by bringing them to mar...
23 Jul 201925min
