Aging with Down Syndrome

Aging with Down Syndrome

Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones aging with Down syndrome. You will hear from leading experts about insights and advances in the field. You will meet professionals who are supporting individuals with Down syndrome through their senior years, and hear first-hand accounts from families who have navigated this caregiving journey. They will talk candidly about the unique challenges and joys found in this aging process, issues related to Alzheimer’s dementia, and give practical tips from lived experience.

Historically speaking, resources on this topic have been limited. Thankfully—as people with Down syndrome are living longer—more information is starting to coalesce. We hope this podcast will be a helpful resource for families and caregivers.

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Episoder(22)

Succession Planning with John Nadworny

Succession Planning with John Nadworny

John Nadworny—a retired Certified Financial Planner with over 30 years of experience working with families of individuals with special needs—reveals how true succession planning goes beyond financial ...

2 Jun 28min

Swallowing Issues & Other Challenges

Swallowing Issues & Other Challenges

In this episode, we talk to Jadene about Matt’s recent onset of swallowing issues and other challenges he’s facing in this new phase of the Alzheimer’s journey. Our conversation touches on adapting ro...

19 Mai 46min

Navigating Grief

Navigating Grief

Sometimes grief shows up in the most unexpected ways, long before our loved ones take their last breath. If you're caring for someone with a terminal diagnosis (like Alzheimer’s), or navigating loss, ...

5 Mai 47min

Life Story | A Simple Tool for Connection

Life Story | A Simple Tool for Connection

Unlock the power of telling a loved one's life story to enrich their care, preserve precious memories, and foster deeper connections. Hear firsthand from Jadene and Kristin, who share how they’ve craf...

21 Apr 35min

Seizures with Dr. Seth Keller | Part 2

Seizures with Dr. Seth Keller | Part 2

In this second episode of our two-part series, we continue our discussion with Dr. Seth Keller, a seasoned neurologist, about seizures and aging with Down syndrome. We delve into myoclonic seizures, f...

7 Apr 53min

Seizures with Dr. Seth Keller | Part 1

Seizures with Dr. Seth Keller | Part 1

In this two-part episode, we delve into the complex world of seizures, particularly in individuals with Down syndrome. With the expertise of Dr. Seth Keller, a seasoned neurologist, we explore the pre...

24 Mar 41min

Aging and Anxiety

Aging and Anxiety

Anxiety can be a challenging issue for families with loved ones who have Down syndrome, especially as they age. We talk with Dr. Ruth Brown-Ennis, a respected authority in mental health for those with...

10 Mar 51min

Molly’s Top Tips

Molly’s Top Tips

On this episode, Molly shares her personal experience with her Aunt Cathy, and advice about caring for a loved one with Alzheimer’s. She emphasizes the importance of: Meeting them where they are and ...

24 Feb 16min

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