Why do Disability Pride and Disability Representation Matter? “Cursed” novelist and JIA Patient Karol Ruth Silverstein
Episode at a glance:Karol’s experience getting diagnosed with JIA at age 13 and being angry, terrified and grumpy about itThe importance of disability representation beyond the cliche “inspirational” ...
14 Jul 202155min
How to Prevent and Cope with Rheumatic Disease Flare Ups
Episode at a glance:Introduction and Agenda Review (1:00)Definition of a Flare Up for rheumatic disease (which includes ankylosing spondylitis, psoriatic arthritis and rheumatoid arthritis) (6:30)What...
5 Jul 202153min
Tips for Pregnancy and Postpartum with Rheumatoid Arthritis with Mariah Leach
This episode includes discussions about:How to decide whether or not to have children while living with a chronic illnessTips for comfortable sex with chronic painFrequently Asked Questions about preg...
17 Jun 20211h 4min
Arthritis Poetry Reading Event
Speaker bios in order of appearance:Kristen Brogan: Kristen has been living with rheumatoid arthritis and Sjogren's since 2018. She is a Board Certified Behavior Analyst and has a PhD in Cognitive and...
8 Jun 202144min
Chronically Brown: The Importance of Cultural Representation in Chronic Illness Communities, With Sukhjeen Kaur
Topics covered in this episode include:Stigmas around disability within South Asian communities.Sukhjeen’s personal story with rheumatoid arthritis and how that led her to form the nonprofit Chronical...
25 Mai 202153min
The Worst Good News: What to do when Test Results are Normal but you Feel Awful? Joel Nelson's Story.
Topics include:Joel shares what it was like to grow up with juvenile idiopathic arthritisJoel explores the vulnerability of doctor patient interactions and the concern chronic illness patients often h...
13 Mai 202158min
Parenting, Faith and Respecting Different Treatment Choices: Conversation with The Rheumatoid Arthritis Mama Renee Anderson
Episode at a glance:Renee’s diagnosis journey after a decade of mystery symptomsHow rheumatoid arthritis has affected Renee’s parenting and homeschoolingRenee’s Christian faith helps her cope with cha...
4 Mai 202150min
It's just a bad day, not a bad life: Julie Croner's Psoriatic Arthritis Journey
Specific topics include:Julie’s experience with multiple knee surgeries Avascular Necrosis leads to Complex Regional Pain Syndrome and Julie is bedriddenfor 6 monthsHow a trip to Disney World led to J...
24 Apr 202145min
