Hacking Hypermobility

Hacking Hypermobility

Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.

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Episoder(46)

22: The Conversation With a Patient Advocate, Part 3

22: The Conversation With a Patient Advocate, Part 3

Two episodes in one day? Why not? We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so i...

23 Mai 202437min

21: Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS

21: Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS

On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects an often underrepresented community within our Zebra Herd: Men.In our first-ever panel interview, we talk...

23 Mai 202454min

20: The Conversation With a Patient Advocate Continues

20: The Conversation With a Patient Advocate Continues

We're back this week with Part 2 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, especially "...

16 Mai 202435min

19: What Is a Patient Advocate, and Do You Need One?

19: What Is a Patient Advocate, and Do You Need One?

In this week's episode, Shelli and Luna interview Megan Karanfil, a board certified Patient Advocate. They discuss what a patient advocate is, what resources an advocate can offer, and the role a pati...

9 Mai 202426min

18: April, Autism, and Intersectionality - Part Two

18: April, Autism, and Intersectionality - Part Two

Meet Jesenia - Creator of Neurospicy Networking

25 Apr 202455min

17: April, Autism, and Intersectionality

17: April, Autism, and Intersectionality

Filmed on location at the Omni Nashville on November 10, 2023Contact LyricalShkspr at lyricalshkspr@gmail.com and purchase her books here: Linktr.ee/lyricalshkspr

11 Apr 202452min

16: All the Love for Charm City

16: All the Love for Charm City

The Bendy Mommas are still on Spring Break and will return in two weeks with new episodes!

28 Mar 20242min

15: Disability Rights and TikTok

15: Disability Rights and TikTok

In this mini episode, The Bendy Mommas discuss why TikTok is important for building communities.In the US, find your elected representatives: https://www.usa.gov/elected-officialsKeep up with the US G...

14 Mar 202411min

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