Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(210)

Breathe Bravely: Giving Voice to CF. Our guest Ashley Ballou-Bonnema

Breathe Bravely: Giving Voice to CF. Our guest Ashley Ballou-Bonnema

Ashley Ballou-Bonnema was featured on CBS Sunday Morning, with Jane Pauley.  That's when I saw her, and screamed from the couch!  I backed up the program to get her name, and knew that I had to get in...

12 Apr 202147min

Scientist, Poet, author, introducing Dr. Paul Quinton

Scientist, Poet, author, introducing Dr. Paul Quinton

Dr. Paul Quinton's early discovery of the defect in CF that prevents chloride ions from crossing cells changed our CF world, and his work allowed us to get to where we are today. When he made his disc...

29 Mar 202149min

Project CF Spouse

Project CF Spouse

For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/Find Project CF Spouse here: https://www.projectcfspouse.com/Vertex P...

15 Mar 202125min

National Organization of African Americans with Cystic Fibrosis (NOAACF)

National Organization of African Americans with Cystic Fibrosis (NOAACF)

Thirty thousand people in the United States have cystic fibrosis, and 5 percent of those people are African Americans.  At least that's what the statistics show.  Michele and Terry Wright believe (and...

8 Mar 202132min

The Middle East CF Association

The Middle East CF Association

The Middle East CF association (MECFA) is working to make lives better for people cystic fibrosis. Christine Noke is the co-founder and CEO of MECFA. The stories you will hear in this podcast are some...

24 Feb 202147min

CF Vests 4 Life

CF Vests 4 Life

CF Vests 4 life was started by Rod Spadinger and Mark Tremblay.  They're on their journey to becoming a 501(c)3.  They're doing great work helping people all over the world get the medical vests they ...

1 Feb 202144min

CF in Egypt Episode 1 - Dr. Samya Nasr

CF in Egypt Episode 1 - Dr. Samya Nasr

Podcast Episode: Dr. Samya Nasr – Changing the CF Landscape in Egypt and BeyondIn this powerful episode, we’re joined by Dr. Samya Nasr, Director of the Cystic Fibrosis Clinic at the University of Mic...

25 Jan 202136min

CF in Egypt Episode 3 - Dr. Samya Nasr and Dr. Maggie Naguib

CF in Egypt Episode 3 - Dr. Samya Nasr and Dr. Maggie Naguib

Dr. Maggie Naguib works at Cairo University in Egypt and is a Professor of Pediatrics.  She talks to Host Laura Bonnell in this podcast, along with Dr. Samya Nasr from the University of Michigan hospi...

25 Jan 202134min

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