Living With Cystic Fibrosis

Jennifer McKinnon is fierce. Doctors said Jennifer wouldn’t live past the age of three.Today, she’s a single mom of twins, an unstoppable advocate who’s raised over a million dollars for cystic fibros...

10 Nov 202527min

The Triple Threat to the Rare Disease Ecosystem — A Conversation with Dr. Wendy ChungSometimes you come across someone whose work changes the way you think about an entire field. That’s exactly what h...

3 Nov 202536min

Our Harvest of Hope Gala was unforgettable—so much love, energy, and sparkle! The theme this year was Diamonds and Denim, and the outfits did not disappoint.Huge thanks to our co-chair, Heather Tramme...

27 Okt 202519min

If you’ve ever been part of the cystic fibrosis community, you’ve probably heard of the sweat chloride test, maybe you’ve even had one yourself. But what does that test really measure, and why does it...

20 Okt 202517min

When Pete Proimos decided to share his cystic fibrosis story at 40, after decades of silence , it marked a turning point. That decision, guided by his philosophy “Out at 40,” sparked a movement built ...

13 Okt 202543min

Turning Diagnosis into Purpose: Deana and Liam’s MissionWhen Liam was diagnosed with cystic fibrosis (10 years ago) at just three weeks old, Deana’s world shifted overnight. What began as one mother’s...

6 Okt 202531min

I had the joy of meeting Heather Ashle in person at a Family Night hosted by Children’s Hospital of Michigan a couple months ago. Her energy lit up the room as she spoke—honestly, nervously, and beaut...

29 Sep 202536min

The unstoppable Jennifer Dunlea is an advocate, a fighter, and an all-around powerhouse. Born with Cystic Fibrosis, Jen has faced more medical battles than most people do in a lifetime, including surv...

22 Sep 202555min