Living With Cystic Fibrosis

"Oh, the people you’ll meet, and the places you’ll go..."That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A quie...

16 Jun 202534min

From Costco to Connection: Podcast Advice That Changed EverythingWhen I spotted a feature on podcasting in The Costco Connection, I was excited. When I saw Michelle Glogovac featured? I knew I had to ...

2 Jun 202547min

Live from Mix and Mingle Education Day: A Powerful Conversation with CaregiversIn this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of ...

26 Mai 20251h 16min

Cystic Fibrosis and obesity?  Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the concer...

19 Mai 202538min

A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of.When Luanne McKinnon was diagnosed in 1969 at just 13 years old, doctor...

12 Mai 20251h 3min

Eight miles. Two friends. One cause.This episode now holds even deeper meaning. Jacob Venditti, who has since passed away from complications of cystic fibrosis (August 16th 2025), shares his story wit...

5 Mai 202531min

From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole DunnWhen our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugged...

21 Apr 202527min

CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend.We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor...

7 Apr 202553min