Changing attitudes and priorities
In a bit of a reflective mood with the winding down of one year and looking forward to new adventures in 2026. Twenty year old me and 64 year old me, certainly in the intervening years have changed at...
29 Des 202516min
Is Christmas the same or is it different?
Some thoughts on Christmas and how as we change with Parkinson's we may need to find a way to do things differently and still keep the Person with Parkinson's (PWP) a part of the festivities.
22 Des 202517min
Forgetting
It seems that most people think that Parkinson's is only a movement disorder condition. However, there are also effects on cognition and memory that are less obvious, but can also be difficult to mana...
20 Des 202516min
Moving on - A village or facility, when and why?
This topic is because of a post on a PD Facebook page where a woman has lost her husband to PD. She now faces her own diagnosis, which was after losing him. Her grief must be immense.
15 Des 202510min
Ability vs Disability
The challenge of trying to get people to understand why I don't want to delay anything I want to do.
10 Des 20259min
"Am I being offensive?"
I have just been made aware that some feel the word "Parkies" is offensive. I don't intend to use this term as applied to a person, but for me Parkies is a separate entity and an unwelcome presence.
3 Des 20259min
Priorities - what do you focus on?
A video popped up on a Facebook Page for people with Parkinson's and those that support them. A husband was talking about how he would have a different priority if he were to have his time again with ...
23 Nov 202513min
"Is lefty doing their job?"
Some reflections and strategies for assessing how much my left side is compromised compared to my right side and how I am trying to monitor and improve left sided involvement.
21 Nov 20257min
