#97: Interview with Ali Ramos, a Social Worker and Disability and LGBTQ+ Activist.
In episode 97, host Kevin Schaefer talks with Ali Ramos (she/her) from Amarillo, Texas. Ali is a licensed social worker and activist, focusing on both the disability and LGBTQ communities. She talks w...
4 Jan 202235min
Spinraza Delays Do Not Directly Affect Children in Italy & Making Goals with SMA
SMA News Today’s multimedia associate, Price Wooldridge, reads a news article on how the delays in Spinraza treatment due to the COVID-19 pandemic did not directly result in worsening symptoms in chil...
3 Jan 202211min
Saliva Samples May Help Diagnose SMA & Moving Into a New Home with SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study showed for the first time that genetic analysis of dried saliva spots correctly identified people with spinal muscular at...
30 Des 202111min
Poor Spinraza Adherence Leads to More Illness, Healthcare Costs & December Can Be Bittersweet
SMA News Today’s multimedia associate, Price Wooldridge, discusses how not having Spinraza therapy as prescribed – called treatment non-adherence – increases overall costs and healthcare use for SMA p...
27 Des 202111min
Treatment Delays May Be Less Important Than Family Support & Cherishing Togetherness During Holidays
SMA News Today’s multimedia associate, Price Wooldridge, discusses how delays of Spinraza treatment due to COVID-19 seem to affect children's function less than weaker family support, small study fou...
23 Des 20218min
Phase 3 Trial of Apitegromab on Track for This Year & Managing Technological Issues With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock plans to initiate a pivotal trial of its muscle-targeted therapy in non-ambulatory spinal muscular atrophy patients in 2...
20 Des 20216min
Neurofilaments and Nerve-muscle Test Show SMA Severity & SMA Adults Struggle to Access Evrysdi
SMA News Today’s multimedia associate, Price Wooldridge, discusses an article about how blood levels of neurofilaments and the results of a nerve-muscle test may be biomarkers for SMA onset/severity a...
16 Des 202114min
#96: Chat with SMA Columnist Halsey Blocher and her Mother & Caregiver, Heather Dye
In this episode, host Kevin Schaefer talks with Halsey Blocher and Heather Dye from Fort Wayne, Indiana. Halsey is a columnist for SMA News Today, and her mother Heather is a caregiver and advocate. D...
14 Des 202134min
