SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

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Episoder(446)

Benefits of SMA Newborn Screening Outweigh Disadvantages In New Survey & Everyday Struggles With SMA

Benefits of SMA Newborn Screening Outweigh Disadvantages In New Survey & Everyday Struggles With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the benefits of Spinal Muscular Atrophy (SMA) newborn screening outweighing the disadvantages. After watching a YouTube video where ...

9 Apr 202110min

#79: Interview With Ainaa Farhanah, a Graphic Designer Living with SMA

#79: Interview With Ainaa Farhanah, a Graphic Designer Living with SMA

In episode 79, host Kevin Schaefer talks with Ainaa Farhanah from Kuala Lumpur, Malaysia. Ainaa is a graphic designer and art teacher with SMA. She talks about growing up with SMA, family, college, an...

8 Apr 202126min

Scholar Rock Wins US Patent for Apitegromab & Receiving The COVID-19 Vaccine And Getting Outside

Scholar Rock Wins US Patent for Apitegromab & Receiving The COVID-19 Vaccine And Getting Outside

SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock winning a U.S. patent to Apitegromab for treating Spinal Muscular Atrophy (SMA). Also, Kevin Schaefer talks about retur...

7 Apr 20217min

Zolgensma Helped Pre-symptomatic Babies Achieve Age-Appropriate Motor Milestones

Zolgensma Helped Pre-symptomatic Babies Achieve Age-Appropriate Motor Milestones

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma helped pre-symptomatic babies with Spinal Muscular Atrophy (SMA) achieve age-appropriate motor milestones. Instagram i...

5 Apr 202111min

Zolgensma Continues to Prevent Motor Function Decline for 5 Years

Zolgensma Continues to Prevent Motor Function Decline for 5 Years

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgenzma continues to prevent motor function decline for five years for patients with Spinal Muscular Atrophy (SMA). Also, SMA ...

2 Apr 202111min

Evrysdi Leads to Longer-term Benefits for SMA Types 2, 3, Data Show

Evrysdi Leads to Longer-term Benefits for SMA Types 2, 3, Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Evrysdi leads to longer-term benefits for Spinal Muscular Atrophy (SMA) patients, Types 2 and 3. Forums Director Kevin Schaefer ...

31 Mar 202111min

Zolgenzma Found To Be Safe And Effective in SMA Toddlers & The Importance of Schedules And Routines

Zolgenzma Found To Be Safe And Effective in SMA Toddlers & The Importance of Schedules And Routines

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being found safe and effective in Spinal Muscular Atrophy (SMA) toddlers. Also, DeAnn Runge welcomes new listeners and for...

29 Mar 202110min

Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology

Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology

SMA News Today’s multimedia associate, Price Wooldridge, discusses how treatment with Evrysdi is safe in Spinal Muscular Atrophy (SMA) patients previously given other therapies. DeAnn Runge talks abo...

26 Mar 20219min

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