#62 - Interview With Shawn Stewart
In episode 62, host Kevin Schaefer talks with Shawn Stewart from southern California. Shawn has his own tax service business, and he has SMA Type 3. He discusses growing up with a disability, adult li...
21 Jul 202040min
#61 - Recapping the 2020 Cure SMA Virtual Conference
In episode 61, the SMA News Today team shares some highlights from the 2020 virtual Cure SMA conference. They discuss webinar presentations, research updates, and virtual social events which they part...
7 Jul 202032min
The First Virtual Cure SMA Conference, Creating a Sanctuary, Scoliosis & Epic Wheelchair Stories
Forums Director Kevin Schaefer talks about taking part in the first virtual Cure SMA conference. This week’s forum topics include DeAnn’s latest vlog regarding creating a sanctuary, scoliosis as an a...
17 Jun 20206min
#60 - Interview With George Corbin
In episode 60, host Kevin Schaefer interviews George Corbin from Neptune, New Jersey. George is a graduate of Temple University, and he has SMA type 3. He currently works as a mortgage loan officer. ...
16 Jun 202036min
How Heart Problems in SMA May Be Tied To Calcium Dysregulation
SMA News Today’s multimedia associate, Price Wooldridge, discusses how heart problems in SMA may be tied to calcium dysregulation. Forums moderator DeAnn Runge shares her thoughts on why reflecting o...
15 Jun 20207min
SHINE Study Data Finds Spinraza Shows Sustained Efficacy Over Years of Use
SMA News Today’s multimedia associate, Price Wooldridge, discusses the SHINE study data showing Spinraza has sustained efficacy. In Brianna Albers’ latest column, she calls for more black representat...
12 Jun 202012min
Cure SMA Conference Going Virtual in 2020 & Tips On Purchasing A New Electric Wheelchair
Forums Director Kevin Schaefer talks about celebrating six years with his caregiver Randy. With the Cure SMA Conference going virtual this year it’s led to many topics of conversation on the forums. ...
10 Jun 20207min
Feeding Issues Are Still Common Among SMA Type 1 Infants, Despite New Therapy Options
SMA News Today’s multimedia associate, Price Wooldridge, discusses how feeding issues still are common among SMA Type 1 infants, despite new therapy options. As salons open up forums moderator talks ...
8 Jun 20206min
