Fatigue Experienced Prior Spinraza Injection & Cure SMA COVID-19 Care Package
Forums Director Kevin Schaefer talks about the fatigue he experiences prior to a Spinraza injection. DeAnn’s latest vlog has been posted where she shows what’s included in the Cure SMA COVID-19 care ...
20 Mai 20205min
#58 - How COVID-19 Affects Spinraza and Other Medical Appointments
In episode 58, the SMA News Today team talks about how the COVID-19 pandemic is impacting their Spinraza appointments and other medical procedures. Hosts Kevin Schaefer and Michael Morale, and forum m...
19 Mai 202029min
How Lung Ultrasound is a Reliable Option to Chest X-rays for Monitoring Children
Forums moderator DeAnn Runge shares how she’s navigating the current world situation and how resuming operations in the next phase poses new challenges and concerns. SMA News Today’s multimedia assoc...
18 Mai 20209min
Study Suggests The Interplay of Motor Neurons and Glial Cells is At The Root of SMA
Forums Director Kevin Schaefer reads from Brianna Albers’ latest column “How Do We Maintain Post-traumatic Growth?” SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study sugg...
15 Mai 20208min
Differences Between Risdiplam and SRK-015, Dealing With Anxiety & Taking Things For Granted
In the forums Michael Morale’s latest video, which points out the differences between risdiplam and SRK-015 as potential SMA treatments, has been a topic of conversation. Brianna Albers' series on d...
13 Mai 20205min
How Risdiplam Defies SMA “Natural History” in Type 1 Infants, According to FIREFISH Study Data
Forums moderator DeAnn Runge shares her experience of getting Spinraza amidst the COVID pandemic. SMA News Today’s multimedia associate, Price Wooldridge, discusses how Risdiplam defies SMA “natural ...
11 Mai 202011min
How Growth-Friendly Spinal Implants May Help SMA Children Before Fusion Surgery
Forums Director Kevin Schaefer talks about an anthology of essays from the New York Times series on disability. SMA News Today’s multimedia associate, Price Wooldridge, discusses how growth-friendly ...
8 Mai 20206min
How SMA-Related Humor Presents Itself in Unexpected Moments, Fundraising Options & Online Therapy
Forums Director Kevin Schaefer talks about how SMA-related humor presents itself in unexpected moments. And also, this week the topics included on the forums range from discussing fundraising options ...
6 Mai 20205min
