The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

POTS Diaries with Megan - finding the right doctor made all the difference

POTS Diaries with Megan - finding the right doctor made all the difference

Megan is a literacy advocate in Georgia and is very passionate about her work.  When POTS and comorbid conditions struck, she had difficulty making it through the work day, and didn't get any relief o...

22 Apr 202537min

MCAS in developmental & behavioral pediatrics with Donna Kirchoff, MD, FAAP: Mast Cell Matters with Dr. Tania Dempsey

MCAS in developmental & behavioral pediatrics with Donna Kirchoff, MD, FAAP: Mast Cell Matters with Dr. Tania Dempsey

Dr. Donna Kirchoff is an integrative developmental and behavioral pediatrician who works with children who have complex conditions, often involving MCAS, autism and other neuroinflammatory conditions ...

15 Apr 202549min

Karen from rural Canada, both patient and healthcare practitioner

Karen from rural Canada, both patient and healthcare practitioner

Karen is a healthcare professional in rural Canadian who had onset of confusing and scary symptoms six days after her third COVID shot.  It took a year to figure out symptoms like "feeling drugged whe...

7 Apr 202536min

Cerebral Blood Flow Findings with Marie-Claire Seeley, RN, PhD

Cerebral Blood Flow Findings with Marie-Claire Seeley, RN, PhD

POTS patients with cognitive dysfunction had SPECT imaging done to measure the blood flow to their brains and lead author, Marie-Claire Seeley, RN, PhD, discusses the dramatic findings.  You can read ...

30 Mar 202547min

Four nutrition findings with Jill Brook, MA

Four nutrition findings with Jill Brook, MA

Jill shares four nutrition findings from general nutrition (not done on POTS patients) that might still be of interest to POTS patients, as they have been shown to affect cognitive function, mood, pai...

25 Mar 202535min

Lily’s transition to career and adulting

Lily’s transition to career and adulting

Lily was our first POTS Diaries guest (Episode #2) as a college student with severe POTS.  She's back to discuss how she navigated planning a POTS-friendly career, the job hunt, cross-country move, 2 ...

15 Mar 202539min

Ayurvedic approach with Gillian Ehrlich, DNP, ARNP: Mast Cell Matters with Dr. Tania Dempsey

Ayurvedic approach with Gillian Ehrlich, DNP, ARNP: Mast Cell Matters with Dr. Tania Dempsey

Gillian Ehrlich's NeuroVeda Clinic in Seattle treats complex patients with a wide variety of treatments including peptides, Ayurvedic medicine, diet and nutrition, imaging, mind-shifting therapeutics,...

11 Mar 202555min

Drug excipients and label inconsistencies with Data Scientist Mike Brook

Drug excipients and label inconsistencies with Data Scientist Mike Brook

Patients with sensitivities to medications or their inactive ingredients ('excipients') often use NIH's DailyMed website to look up excipients or alternative drug formulations that might work better f...

4 Mar 202535min

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