The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

E152: POTS Diary with Autumnizhurr, a content creator and gamer from California

E152: POTS Diary with Autumnizhurr, a content creator and gamer from California

Autumnizhurr has been disabled since college, due to POTS and Wolff Parkinson White Syndrome. She has had several heart ablations to minimize her symptoms, although they caused other problems. She is ...

18 Jul 202338min

E151: POTS Diary with Rebecca from New Zealand, a young nurse who had to move home to deal with symptoms

E151: POTS Diary with Rebecca from New Zealand, a young nurse who had to move home to deal with symptoms

Rebecca was living the dream when POTS hit - just out of college, living in a flat with friends, working as a nurse in the hospital - and forced her to move back home. Slowly, she improved after being...

11 Jul 202319min

E150: Diary with POTSie Lyla and POTSmom Joli

E150: Diary with POTSie Lyla and POTSmom Joli

This episode features a mother and daughter describing how POTS has impacted their daily life. Lyla has had medical issues for most of her life, but a bug bite seemed to really have exacerbated her sy...

4 Jul 202331min

E146: Research on Long COVID and POTS with Marie Claire Seeley

E146: Research on Long COVID and POTS with Marie Claire Seeley

The pandemic has provided a unique opportunity to study new onset POTS cases with a known trigger - COVID. The symptom similarities are striking between those with POTS and Long COVID in this Australi...

3 Jul 202347min

E149: Tried all the recommendations? What to do next?

E149: Tried all the recommendations? What to do next?

Jill and Dr. Cathy Pederson discuss what to do after you have exhausted practitioner recommendations. There are lots of ideas provided, as well as tips on how to evaluate each potential new treatment....

27 Jun 202351min

E148: POTS Diary with Nicole from Texas, news reporter who got a POTS story on the Today Show

E148: POTS Diary with Nicole from Texas, news reporter who got a POTS story on the Today Show

Nicole's career as a news reporter in Anchorage, AK and Raleigh, NC was cut short when she developed POTS. While her symptoms have improved since that time, she is still not able to be upright enough ...

24 Jun 202332min

E147: Gynecological Issues & Pregnancy in MCAS with Dr. Shanda Dorff

E147: Gynecological Issues & Pregnancy in MCAS with Dr. Shanda Dorff

After issues with her own MCAS, Dr. Shanda Dorff started to investigate the impact of MCAS on people with a variety of gynecological issues like pelvic pain, heavy bleeding, etc. and during pregnancy....

20 Jun 202357min

E145: POTS Diary with POTS Parent Leigh from Washington DC

E145: POTS Diary with POTS Parent Leigh from Washington DC

In retrospect, Leigh's daughter had symptoms since age 4, but her daughter's POTS wasn't diagnosed until she was a teenager. Leigh describes the struggle of the parent - worry, grief, questioning deci...

10 Jun 202332min

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