The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

Julie on the lengths she had to go to for recovery

Julie on the lengths she had to go to for recovery

Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not endorsing: talk to YOUR doct...

7 Mar 45min

Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters

Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters

Dr. Dempsey is always looking for new therapies that may help her complex patients.  In this episode Dr. Dempsey discusses how she incorporates treatments with Methylene Blue, peptides, and the Nanovi...

1 Mar 47min

Maggie on being both patient and Mental Health Therapist

Maggie on being both patient and Mental Health Therapist

Maggie was 14 when she started passing out regularly, and she still does occasionally, but that didn't stop her from getting back to school, completing graduate work and becoming a Mental Health Thera...

25 Feb 36min

The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L

The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L

Joanna Behm, EDD OTR/L and Madison Thornton, OTD, OTR/L are experts in occupational therapy (OT) as therapists, dysautonomia patients, and Joanna is even a professor of OT.  Together they created a wo...

17 Feb 37min

Dr. Casey Kelley on Mast Cell Matters

Dr. Casey Kelley on Mast Cell Matters

Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex ch...

10 Feb 40min

Sophie on life after severe COVID

Sophie on life after severe COVID

Surviving severe COVID was just beginning of Sophie's health adventure.  She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped...

3 Feb 41min

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness.  In t...

27 Jan 42min

Singer-songwriter Nellie Clay on “the hangover without the party”

Singer-songwriter Nellie Clay on “the hangover without the party”

Western folk singer-songwriter Nellie has recorded multiple albums and EPs, toured nationally from Alaska to Nashville, appeared on PBS’s Songs at the Center, opened for Grammy-nominated artists, and ...

20 Jan 44min

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