The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Episoder(250)

Dr. Asad Khan on long COVID, micro-clots and more

Dr. Asad Khan on long COVID, micro-clots and more

Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself.  Now retired due to chronic illness, he is a leader in patient advocacy...

4 Aug 20251h 9min

POTS Diaries with Randi:  Surgical nurse, stoic and survivor

POTS Diaries with Randi: Surgical nurse, stoic and survivor

Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more ...

29 Jul 202530min

Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild

Vagal nerve stimulation and heart rate variability with Exercise Physiologist Caelum Schild

Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutaneo...

20 Jul 202550min

Kai, on living with profound ME/CFS

Kai, on living with profound ME/CFS

Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations: what an average day is like, the price paid for doing bas...

13 Jul 202546min

Todd Maderis, ND on novel treatments - Mast Cell Matters with Dr. Tania Dempsey

Todd Maderis, ND on novel treatments - Mast Cell Matters with Dr. Tania Dempsey

Dr. Todd Maderis is a naturopathic physician in Marin, CA, who began his career in environmental medicine and now specializes in helping complex patients by searching for the root causes of their illn...

7 Jul 20251h 2min

Clare on being in law school with seizures and POTS

Clare on being in law school with seizures and POTS

Clare is a law student who has a genetic condition that causes epileptic seizures, which may have ultimately led to POTS.  She is unfortunately highly experienced in losing consciousness.  But she is ...

28 Jun 202538min

POTS Practitioners:  Dr. Jen Curtin on the RTHM approach to improving care for complex patients

POTS Practitioners: Dr. Jen Curtin on the RTHM approach to improving care for complex patients

Dr. Jennifer Curtin is using the latest technologies to improve patient care and offerings.  She was a ME/CFS patient herself when she went to medical school, and now is Medical Director of the RTHM C...

23 Jun 202552min

Alici’a, a nauseous, resilient, animal-lover

Alici’a, a nauseous, resilient, animal-lover

Alici'a has spent a LOT of time hugging garbage pails, due to extreme nausea, and she did not get the support she hoped from her school or  insurance company, but that didn't keep her from figuring ou...

15 Jun 202532min

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