About IBD26 Mars 2019

Help for Parents With Crohn's Disease or Ulcerative Colitis

How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn's and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media.

1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood Project

Concepts and ideas discussed in this episode:

Resources From the Crohn's and Colitis Foundation:
- Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis
- Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist
- Just Like Me: http://justlikemeibd.org
- Quiz My IBD: http://www.ibdskillsquiz.org
- Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/
- Crohn's & Colitis Community: https://www.crohnscolitiscommunity.org/
The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/

Find Dr Rajeev Jain at:

Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/
Twitter: https://twitter.com/rajster

Find IBD Moms at:

Facebook: https://www.facebook.com/IBDMoms/
Twitter: https://twitter.com/ibdmoms
Instagram: https://www.instagram.com/ibdmoms/<

Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at:

Blog: https://crazycreolemommy.com/
Facebook: https://www.facebook.com/CrazyCreoleMama
Twitter: https://twitter.com/CrzyCreoleMommy/
Instagram: https://www.instagram.com/crazycreolemama/

Find Amber J Tresca at:

Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
Blog: http://aboutibd.com/
Facebook: https://www.facebook.com/aboutibd
Twitter: https://twitter.com/aboutIBD
Pinterest: https://www.pinterest.com/aboutibd/
Instagram: https://www.instagram.com/about_IBD/

Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney

"About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(200)

Powerful Lessons: How Women Experience Life With IBD Featuring Alicia Aiello of Girls With Guts

Episode transcript and more information at: https://bit.ly/AIBD207 Alicia Aiello, president of Girls With Guts, shares her journey with IBD, which began in childhood. She discusses major surgeries, in...

11 Aug 49min

Hidden Ways IBD Affects You Over a Lifetime With Puja Khanna, MD

The truth about inflammatory bowel disease (IBD) is that it goes beyond the gut. In this first ever live recording of About IBD, Amber talks with Dr. Puja Khanna from Cedars-Sinai to explore the extra...

21 Juli 41min

How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe

Emergency room visits are a source of stress and can lead to fragmented care. Amber speaks with psychologist Dr Stephen Lupe to learn why inflammatory bowel disease (IBD) patients avoid the ER, the re...

7 Juli 35min

Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three m...

23 Juni 36min

Insider Secrets to Fearless Travel with IBD

Certified travel advisor, business owner, and ulcerative colitis patient Sarah McGovern joins Amber to give tips and tricks on traveling with IBD. Sarah relates her IBD journey, including a rare medic...

9 Juni 58min

The Powerful Impact of the IBD Community Featuring Katie Neu

Episode transcript and more information at: https://bit.ly/AIBD202 Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel ...

19 Maj 42min

Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five...

5 Maj 1h 18min

Is Your Eye Pain Actually an IBD Flare?

Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-in...

21 Apr 16min