Albinism Life - “I have been mistaken for colonel Sanders”
Ben is a student doing a degree to become a professional musician - he is a drummer. Ben talks about the challenges of living independently, his dislike for crossing roads and sunlight! We chat about ...
17 Jan 202537min
Albinism Life - When you find out your baby has albinism.
Jon & Debbie talk about their journey, finding out their daughter, Cleo had albinism. We discuss the early days and months after Cleo’s diagnosis, having more children, modelling and equipping their d...
17 Jan 202555min
Albinism life - “I know when you are chewing gum”
Adam is a deputy head teacher at a large secondary school in the UK. He is also a Paralympian, dad and an all round amazing positive person. We chat about the goalball, the challenges of teaching wit...
17 Jan 202527min
Albinism Life - Albinism research with Dr Helena Lee
Helens Lee is a children’s eye doctor and clinician scientist who is currently researching the potential of improving retinal development and therefore vision in infants and young children in the fi...
17 Jan 202527min
Albinism Life “I had a frozen orange thrown at my head”
Jenny bovard lives in Canada. We chat about growing up with albinism, the journey of self acceptance, hiding our visual impairment and lots more. Jenny is a such fun to chat to and a great story telle...
17 Jan 202550min
Albinism Life “I just wanted to see someone like me”
Sara chats about what role models mean to her and how they don’t have to be Paralympic gold medalists, just people she can relate to. Sara and Kristina are best friends and met at an albinism conferen...
17 Jan 202534min
Nystagmus & albinism 101
Dr Jay Self is a children’s eye doctor, clinician researcher and professor at the University of Southampton. Albinism and nystagmus usually go hand in hand (but not always) Jay explains the impact ny...
17 Jan 202527min
Albinism Life “I am always remembered by people because I have albinism”
Jess is currently studying for her A-levels, she wants to become a lawyer. Jess talks about how hard it can be at school socially when you have albinism. Not fitting in with any group and how that can...
17 Jan 202551min
