Living With Cystic Fibrosis

In January, The American Thoracic Society (ATS) held a webinar about the challenges facing CF families in low-income countries.  Drs. Samya Nasr and Grace Paul were key participants in the webinar. Tw...

12 Juni 202341min

The Live Fearlessly Foundation? It’s the creation of Jacob Venditti.  Jacob is a surfer and lover of life.  He's also a social impact entrepreneur, community builder, multimedia producer, keynote spea...

5 Juni 202321min

Laura Bonnell, the Host of the Living with cystic fibrosis podcast, does a solo podcast this time around. This is her story, life without CF, diagnosis (here comes CF ready or not) and starting a Foun...

29 Maj 202340min

The CF Legal Information Hotline. A brilliant idea.  The woman who made it happen is 57 year old Beth Sufian, who has CF.Attorney Beth Sufian works just about around the clock helping and answering qu...

22 Maj 202343min

We need to education and come up with solutions to help the people of India with cystic fibrosis.  Facts of CF in India:There are 40,000 people diagnosed with CF in the U.S. and 70,000 worldwide, but ...

15 Maj 20231h 6min

It's 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right?  Nope.  They are still underdiagnosed.  We hear about it happening in low income countries, but it's hap...

8 Maj 202340min

The CF community is a small, tight knit group.  There are 40-thousand patients with CF in the U.S., and double the amount of parents. many of us in the CF community know each other, or have heard of o...

1 Maj 202335min

People getting married who have CF. We don’t hear it happening very often.  We’ve always been told that people with CF should not be in the same room, unless they are 6 feet apart.  This is impossible...

6 Mars 202343min