Living With Cystic Fibrosis

Does your CF clinic offer a place for you to express your concerns and successes about CF?  The University of Michigan Medical Center started a zoom program during the pandemic that allowed its adult ...

27 Feb 202329min

Imagine having children with CF and living in another country.  In your country they don't have any CF medications, and maybe only a handful of people have been diagnosed with the disease.  Even testi...

20 Feb 202339min

Indubious. Live Indubiously. Indubians. What am I talking about?  The band Indubious was founded by two brothers, 38 years old Evan Burton and 41 year old Skip Burton.  Both happen to have CF.  They r...

13 Feb 202341min

Almost everyone in the CF community knows who Andy Lipman is and all the contributions he has made. Andy, and his older sister Wendy were born with cystic fibrosis.  Wendy died when she was only 16 da...

6 Feb 202336min

Dr. Harutai Kamalaporn sees 12 of the 30 patients diagnosed with CF in Thailand.  The challenges she faces are: lack of medications, equipment and sweat chloride tests at all three hospitals.  Dr. Kam...

30 Jan 202330min

If you are taking one of Vertex’s medications, you may be aware that the GPS program at Vertex recently made changes to its co-pay assistance program. In September of 2022, a patient advocate at Verte...

23 Jan 202335min

19 year old Atef Choudhury and 18 year old Naim Mashni are both sophomores at MSU, and they have found their voice.  Atef has a nephew with CF and that is what made him want to start to raise awarenes...

16 Jan 202321min

Did you know your child should visit a pediatric dentist? Did you know that people with CF generally have better dental health than the rest of the general population? Are you familiar with a toothbru...

9 Jan 202339min