Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Avsnitt(210)

CF Vests Worldwide

CF Vests Worldwide

Not everyone with CF enjoys the same level of care.  Tragically it depends where you live.  Some countries don’t even recognize the disease. If a country doesn’t recognize CF, that means medications a...

2 Jan 202335min

All things Lung Transplant with Jen Weber

All things Lung Transplant with Jen Weber

Attorney Jen Weber is 49 years old and waiting to have her third lung transplant. Weber lived in Indiana until this third transplant, when she had to move to Durham, North Carolina to be near her tran...

5 Dec 202228min

A Kid Again Adventures

A Kid Again Adventures

We’re talking today with the founder of A Kid Again, Kathy Derr. It is a nonprofit organization that plans family adventures in many states across the U.S.  and the adventures are free to families.Kat...

7 Nov 202230min

Our first CF Podcast in Spanish

Our first CF Podcast in Spanish

Dr. Jennifer Shedden of Genentech reached out to the Bonnell Foundation to raise awareness about cystic fibrosis in the Hispanic community, and the non-CF community.  We started the CF Familia page!We...

3 Okt 202228min

Costly transplants: don't go broke.   More help...

Costly transplants: don't go broke. More help...

The Children’s Organ Transplant Association (C.O.T.A), helps people waiting for transplants, fund the procedure and everything that surrounds it. Laura Bonnell learned about COTA when her nephews need...

12 Sep 202233min

CF and Colon Cancer with Anna Payne

CF and Colon Cancer with Anna Payne

CF and Colon cancer, the risks are higher than you may be aware.  Anna Payne is 35 years old and was diagnosed with stage 4 colon cancer a year ago.Anna is advocating to get colon cancer screening dow...

22 Aug 202245min

Andrea and Alyson Hoffman

Andrea and Alyson Hoffman

Andrea Hoffman and Alyson are twins born with CF. Andrea is 30 seconds older than her sister.  The women attend Ohio Northern University.  As you will hear, they are over achievers!This is the twin’s ...

11 Juli 202244min

Dr Jennifer Shedden

Dr Jennifer Shedden

Dr. Jennifer Shedden, with Genentech, reached out to the Bonnell Foundation to see if we were interested in raising awareness about cystic fibrosis in the Hispanic community, and the non CF community....

5 Juli 202239min

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