Candid Conversations with CHD Dads: Strength, Support, and Survival

Candid Conversations with CHD Dads: Strength, Support, and Survival

What does it take to be a father in the CHD (Congenital Heart Defect) community? We sat down with three amazing dads—Chris Harris, Dylan Henricks, and Michael McKelvey—to find out. Each of these men has a unique story to tell about parenting a child with CHD. Chris is the father of a baby born with a double outlet right ventricle, while Dylan is both a father and a person born with CHD himself. Michael, also born with CHD, recently became a dad to a heart-healthy child and brings a different perspective to the table.

During our candid conversation, these fathers opened up about everything from their fears and concerns during pregnancy to the joy of welcoming a healthy child. We explored the role technology and social media play in providing support and boosting confidence as parents navigate this complex journey. We also spoke about the power of financial assistance and the challenge of managing the costs associated with CHD. But perhaps most importantly, our guests shared their stories of resilience, strength, and the unique challenges they face as fathers in the CHD community.

As we wrapped up our conversation, we talked about the importance of challenging negative stereotypes about dads in the CHD community. It's a testament to the incredible dedication and hard work of all parents—both mothers and fathers—in this community. Join us to hear these inspiring stories and discover what fatherhood really means in the CHD community.

Helpful Links:

The Heart of a Father -- the book Anna mentioned in the show --
https://www.babyheartspress.com

Many thanks to Myles Schweitzer -- the Wild Mooseman Band for our music. We love you, Myles!

To support our show, please join our Patreon team:
https://www.patreon.com/HearttoHeart

Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-congenital-heart-chronicles--5779157/support.

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Episoder(44)

Strength in Vulnerability: CHD Patients Turn Caregivers

Strength in Vulnerability: CHD Patients Turn Caregivers

(00:00:00) Strength in Vulnerability: CHD Patients Turn Caregivers (00:00:05) Intro & Guest Introductions (00:03:11) Donna: From Patient to Parent-Caregiver (00:05:04) Dillon: Fatherhood & Jackson's D...

1 Sep 1h 1min

Navigating Emotional Transitions with CHD

Navigating Emotional Transitions with CHD

(00:00:00) Naming the Unspoken (00:00:26) Welcome and Topic Setup (00:01:21) Meet the Panel (00:04:07) Corinne on Life Decades (00:06:55) Insurance and Anxiety Relief (00:09:18) Jen Finds Her Voice (0...

2 Aug 1h 12min

Heart Camps That Change Lives

Heart Camps That Change Lives

(00:00:00) Welcome And Why Heart Camps Matter (00:02:50) Beat Retreat Begins For Adults (00:03:52) Camp Life Plus Anonymous Q&A (00:05:53) Camp Meridian For Kids And Teens (00:09:15) Accessibility And...

30 Jun 53min

After the Shock: From Diagnosis to Direction

After the Shock: From Diagnosis to Direction

(00:00:00) Welcome And Meet The Panel (00:03:12) The First Appointment Shock (00:06:39) Dismissed Symptoms And Second Opinions (00:08:16) Fight Or Flight And Family Pressure (00:12:01) How To Prepare ...

16 Jun 47min

Stroke Awareness: Awareness Today, Stronger Tomorrow

Stroke Awareness: Awareness Today, Stronger Tomorrow

(00:00:00) Introductions And Stroke Risk In CHD (00:03:40) What The First Symptoms Felt Like (00:10:09) Stroke Watch Meds And Follow Up (00:12:21) The Surprising Aftereffects Of Stroke (00:17:27) List...

31 Mai 1h 12min

Easing Anxiety Before the Operating Room

Easing Anxiety Before the Operating Room

(00:00:00) A Lifelong Patient’s Reality (00:01:16) What Triggers Pre-Op Anxiety (00:04:10) Frank’s OR Calm And Clear Words (00:09:05) Hypnotic Rapport And Familiar Voices (00:14:45) Music Therapy Tool...

28 Apr 57min

Tested Love Documentary On Faith And CHD Trauma

Tested Love Documentary On Faith And CHD Trauma

(00:00:00) Welcome! (00:02:06) A Heart Dad Chooses Hope (00:04:14) Demi's Miracle Through Music (00:08:23) Coping with Trauma Through Faith (00:11:48) Why Men's Mental Health Matters (00:15:11) CHD Re...

23 Mar 54min

New Year, New Narratives

New Year, New Narratives

In the first episode of Season 4, Anna Jaworski announces that The CHC Podcast: Congenital Heart Conversations has been reintroduced as Congenital Heart Chronicles after listener voting. This reflects...

1 Mar 36min

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