Living With Cystic Fibrosis

Canadian, Vicky Maldonado is the mother of a young boy living with a rare genetic form of CF. Sebastian is 6 years old, and a twin. The road to diagnosis was challenging. Sebastian was diagnosed with ...

11 Mar 202438min

A better future for health for: All of Us!Dr. Josh Denny is the All of Us Research program, CEO. A program that comes from the National Institute of Health.  The Bonnell Foundation is all about Scienc...

4 Mar 202439min

(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you)Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundati...

26 Feb 202440min

This is our third podcast with Alan Klein, the Chief Development Officer Healthwell. As a reminder Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the ...

19 Feb 202419min

(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you)What a treat for all of us today.  Nicholas Kelly is in the house. I've wanted him on our podcast for a...

12 Feb 202444min

Karen McEwan’s daughter, Elana, is 20 years old.  It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD).  This is the fi...

5 Feb 202445min

Rena Barrow has two kids with CF, Jarrod is 22 and Jahsir is 3 years old. Over the years she’s witnessed a discrepancy in care for people of color.  Even after her 22 year old son was diagnosed, docto...

29 Jan 202440min

I am excited that all of you will get to meet  Dr. Susanna McColley!!!!  I was so impressed with her commitment to CF and her incredible medical and life knowledge.  Dr. McColley works to promote equi...

22 Jan 202454min