Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(211)

CF Woman climbs Kilimanjaro (Caroline Heffernan)

CF Woman climbs Kilimanjaro (Caroline Heffernan)

Caroline Heffernan talks to CF families about all sorts of things, employment, family support, housing issues, cross infection, fertility…you name it. Caroline talks all things CF.  As someone with CF...

15 Jan 202444min

Queen Kwong, AKA Carre Callaway -rock n roll and CF

Queen Kwong, AKA Carre Callaway -rock n roll and CF

Carre Callaway (Queen Kwong) tours in the U.S., U.K. and wherever her music takes her.  Carre ended her tour and was in Los Angeles when we talked with her on this podcast.  She talks about how music ...

8 Jan 202450min

Dr. John Schuen, life at the Grand Rapids CF clinic

Dr. John Schuen, life at the Grand Rapids CF clinic

Please consider subscribing, rating and commenting on our podcast (Spotify). But you can hear our podcasts anywhere.Dr. John Schuen is the division Chief of Pediatric Aerodigestive Specialties at Hele...

27 Nov 202331min

Bernie Martin - CF Mum in Ireland

Bernie Martin - CF Mum in Ireland

Bernie Martin is a Writer, Creative Consultant and, most importantly, Mother of a CF Fighter. After 15 years working as a Copywriter and Creative Director in some of Ireland’s top advertising agencies...

20 Nov 202340min

Newborn Screening, will you be diagnosed with CF?

Newborn Screening, will you be diagnosed with CF?

Newborn Screening, do you know what it is, do you everything about it?  Did you know that people of color are less likely to be diagnosed by newborn screen because in most cases, states test for commo...

13 Nov 202343min

The fate of Healthwell, what is their future?

The fate of Healthwell, what is their future?

Please consider subscribing and rating our podcast. It helps us to promote. Thank you.This is a follow-up podcast about the Healthwell Foundation. Thanks again to Alan Klein, the Chief Development Off...

6 Nov 202327min

CF in Israel, during a war...

CF in Israel, during a war...

(Please consider subscribing and rating our podcast. It helps us to promote. Thank you.)Israel is at war. The emotional toll on families in Israel and Palestine is unimaginable.Israeli, 43 year old Ni...

30 Okt 202344min

Rory Tallon, Dating someone who also has CF.

Rory Tallon, Dating someone who also has CF.

51 year old Rory Tallon works with Cystic Fibrosis Ireland as a CF Patient Advocate as part of CFI’s member service team. Rory has CF and was recently featured in our Living with cystic fibrosis podca...

23 Okt 202330min

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