Living With Cystic Fibrosis

CF in the family. ​Making it your life's purpose. Then The Crossing for cystic fibrosis, from the Bahamas to Florida was born. ​Travis' parents didn't know they had three children with CF. When Travis...

19 Jun 202349min

In January, The American Thoracic Society (ATS) held a webinar about the challenges facing CF families in low-income countries.  Drs. Samya Nasr and Grace Paul were key participants in the webinar. Tw...

12 Jun 202341min

The Live Fearlessly Foundation? It’s the creation of Jacob Venditti.  Jacob is a surfer and lover of life.  He's also a social impact entrepreneur, community builder, multimedia producer, keynote spea...

5 Jun 202321min

Laura Bonnell, the Host of the Living with cystic fibrosis podcast, does a solo podcast this time around. This is her story, life without CF, diagnosis (here comes CF ready or not) and starting a Foun...

29 Mai 202340min

The CF Legal Information Hotline. A brilliant idea.  The woman who made it happen is 57 year old Beth Sufian, who has CF.Attorney Beth Sufian works just about around the clock helping and answering qu...

22 Mai 202343min

We need to education and come up with solutions to help the people of India with cystic fibrosis.  Facts of CF in India:There are 40,000 people diagnosed with CF in the U.S. and 70,000 worldwide, but ...

15 Mai 20231h 6min

It's 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right?  Nope.  They are still underdiagnosed.  We hear about it happening in low income countries, but it's hap...

8 Mai 202340min

The CF community is a small, tight knit group.  There are 40-thousand patients with CF in the U.S., and double the amount of parents. many of us in the CF community know each other, or have heard of o...

1 Mai 202335min